The Jeremy Kyle Show (23 March 2018)
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00:00You're watching On Demand.
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00:10On today's very special show...
00:16He's the happiest kid in the world.
00:22She never, ever complains.
00:26I just want to raise awareness of his condition.
00:29She's amazing. She's just amazing.
00:32Nothing ever gets her down.
00:34How would you describe your brother?
00:36He's brave, he's strong.
00:38I think he's the best out of the best.
00:54Somebody told me that you like princesses, is that right?
00:57He's in doubt!
01:04I've heard you've been looking at all the girls backstage, is that right?
01:07Yes.
01:09Would you like to go to Sea Life in London for a VIP date?
01:13No, Sea Life's in Bath!
01:28CHEERING AND APPLAUSE
01:32Hello.
01:37Hello, my friends, good morning.
01:39A very special welcome to an episode of the JK Show
01:41that features some truly inspirational kids and their amazing families.
01:45Now, my first guests today, Matt and Sarah, are here
01:47because just two months ago, they suffered every parent's worst nightmare
01:50when their two-year-old Finlay contracted the deadly illness
01:53meningitis septicaemia and came close to death.
01:55I don't think you can ever begin to imagine what this would do to a family,
01:58what this young man has gone through.
02:00They are here to share their story. Incredibly brave as well.
02:03Matt and Sarah are on the Jeremy Carr Show That Way.
02:05APPLAUSE
02:13Thank you for coming in. You all right?
02:15Yeah, a little bit.
02:16You're doing well, take a seat.
02:20I've actually met him already.
02:23Unbelievable. Yeah.
02:25Two months ago, literally out of the blue,
02:29every parent's worst nightmare.
02:31Yeah, he was very poorly, throwing up a lot, being sick.
02:35At that moment, what did you think?
02:37I knew something was wrong.
02:38Any rash? Nothing.
02:40Spots on his chest? Three.
02:42Three tiny things that I thought was maybe pimples, something like that.
02:45Nothing compared to what I thought with meningitis.
02:48Took him to hospital? Took him to the GP first.
02:51He was diagnosed with tonsillitis.
02:54But the doctor realised he had blue lips,
02:57so he said, what was it, 5% chance of sepsis?
03:00So, typed it in, they said get him to A&E, ASAP, blues and twos.
03:04So, Finny and his mum went down in the ambulance, I went in the car.
03:08What were you thinking about at that moment when you were driving along?
03:11Cos he said 5%, I was just worried if he'd just been overcautious,
03:14so the panic wasn't there.
03:16There was no panic at all, really, it was just,
03:18OK, they just want to have a check-up.
03:20So, they took him to A&E, gave him some antibiotics,
03:23then they put him up in the children's ward to keep an eye on him,
03:26to make sure he was OK.
03:28To the point that you were planning on sending him home that evening?
03:31They stripped him off, they was taking blood and giving him meds
03:34and whatever else, and he had all these spots.
03:36He didn't cry at any needles or anything.
03:38I see a little scratch on his wrist, so I touched that.
03:40He cried the hospital down.
03:42So, I got the nurses in.
03:44Within five minutes, we had about seven doctors, six nurses,
03:47running round, taking blood, giving injections, giving this and that
03:50and checking pulses, everything.
03:52That's when we realised, hang on.
03:57The next bit, when they actually came in and told us that
03:59and put him in intensive care, as soon as you hear the word intensive care,
04:02you just think, oh, hell.
04:04They put him in an induced coma?
04:06They took him downstairs, put him in an induced coma
04:09at about three o'clock, wasn't it? Yeah.
04:11At that moment, what goes through your head?
04:14You don't really have time to think, do you?
04:16No. You just think the worst.
04:18You just think, how can this happen to this little boy?
04:21You know, he was amazing, he just went really poorly.
04:24Did he get angry? Did he get mad?
04:26It's a question of why does it have to be your child,
04:28but then you wouldn't wish that on anybody else either.
04:31I think you're too worried to be angry, or myself, I was too worried to be angry.
04:35As I said, they took us downstairs when they was taking us
04:38to the next hospital for intensive care, and that's the rash he had.
04:44It was a lot worse than that, that was on the better days, wasn't it?
04:47Yeah, that was a couple of days in. He was in hospital for two weeks.
04:50That was in Stoke University, that was the intensive care.
04:53And we know, sadly, from meningitis that it cuts off supply
04:58and his fingers, toes and feet turn black.
05:01Yes, then the first three days was a waiting game on how bad he was.
05:06We was told later on that the first three days
05:09the doctors didn't think he was going to make it.
05:12They were more concerned for his life than anything else, those first three days,
05:15and we was like, OK, I'm glad we didn't know that at the time,
05:18because it would have been even worse.
05:20When you had your two-year-old kid, life and soul of the party,
05:24helplessly lying there in intensive care,
05:26and you as parents get told that his limbs have to be amputated,
05:30what's that like, Mum?
05:33I don't even... I can't even tell you, it's horrendous, it's horrible.
05:37Life-changing. How are you so... Have you blanked it out, what?
05:42It's just the way that he's dealt with things,
05:44he's just got on with it and has made things so much easier.
05:48Because, obviously, you always expect that...
05:51You plan a future for your child in your head
05:53and you obviously don't expect that child to grow up
05:56without feet or fingers or thumbs.
05:58I cannot believe, and I've done this for 13 years,
06:02I met this kid half an hour ago, he's two, this was eight weeks ago.
06:07You said to my team, he lost both hands and feet to the disease
06:12and yet every single day this kid wakes up with a smile on his face.
06:16It's an absolute pocket rocket, isn't it?
06:19You have no idea.
06:20You say that, I do have some idea, but the pride in your face,
06:24and you say that the biggest fear, actually, which you totally understand,
06:28was that he wouldn't be happy,
06:30but it's the rest of the world that's unhappy.
06:33This kid's... We're not making up, he's unbelievable, isn't he?
06:36He's the happiest kid in the world.
06:38APPLAUSE
06:41Now, listen, I am so chuffed to have him here,
06:44with his brother, Brandon, who's also a star, isn't he?
06:47Yes.
06:48He's told me exactly what a pain in the backside Finlay is.
06:51Finlay and Brandon on The Jeremy Carl Show, that works.
06:54CHEERING AND APPLAUSE
07:02Here we go.
07:04This kid's amazing.
07:07You all right, mate? Hello? You all right?
07:09Yeah, good boy.
07:10Say hiya.
07:11Have you been a good boy?
07:14They're scared.
07:15You've been crawling everywhere.
07:17Mummy. Mummy, that's Mummy.
07:19Yeah.
07:20Mummy.
07:21Aw!
07:22Right, listen, Brandon, how are you?
07:24I'm fine.
07:25You've been amazing with all of this.
07:27How would you describe your brother?
07:29He's brave, he's strong.
07:31I think he's the best out of the best.
07:33APPLAUSE
07:35But you...
07:37But you've also been amazing.
07:40You've also been amazing, haven't you?
07:42Yeah, but he's better, because he's stayed through a lot,
07:46like he's stayed through getting his hands off and stuff like that.
07:52You can always look after him.
07:54And he's all fine, and he...
07:56Yep, that's all I'm going to do.
07:58Oh, good boy!
08:00APPLAUSE
08:05Right, listen, I thought...
08:07Hey, Finlay, do you want some presents?
08:09Yeah.
08:10Do you want some presents?
08:11Yes, what?
08:12Yes or no?
08:13Yes, please.
08:14No? Presents?
08:15Right, this is where it all goes wrong.
08:17Presents, come on!
08:18APPLAUSE
08:23Hold on.
08:30Do you like dinosaurs?
08:32What's that?
08:33What's that?
08:34You've done the presents, get off.
08:38That's a big dinosaur, isn't it?
08:40Do you like dinosaurs?
08:42Football.
08:43Football.
08:44Football, there we go.
08:45Do you want... No, you don't want the...
08:47He wants to go on the floor.
08:48Yeah, go on the floor then, come on, let's go on the floor,
08:50come on, that's fine.
08:51Right, listen.
08:52Do you like... You do like the dinosaurs game.
08:54Yeah.
08:55Right, well, OK.
08:57Right, listen... Oh, yes.
08:59No.
09:02This...
09:03Shouldn't have bothered with the other one, this would have done.
09:06Do you think that... Do you think that's a big...
09:08Right, come here, I'm going to show you something now.
09:10Right, listen to me, come here.
09:12Right, look at this, right, come here, look at this.
09:14Right, look at this.
09:16I've got somebody you want to meet, look at this.
09:19Look, show me now.
09:25Would you like to meet the dinosaur?
09:29Would you like to meet the dinosaur?
09:35I think he's going to come that way.
09:47Do you like a dinosaur?
09:48Don't growl.
09:49He's waving.
09:50Wave to Finlay, dinosaur.
09:52Cos that's what dinosaurs do, isn't it?
09:54They wave.
09:59Do you like them?
10:04Are you having trouble keeping up?
10:10Right, listen, I've got you some other presents.
10:12Do you know what Flamingoland is?
10:14It's just a...
10:15It's amazing, take a look.
10:16It's in Yorkshire, it's a theme park and a zoo.
10:18And we're going to send you there as a family,
10:20you're going to have an animal encounter,
10:22it's absolutely an amazing day out, isn't it?
10:30You're amazing.
10:33And also, do you know what Go Ape is?
10:35Yes.
10:36It's amazing.
10:37And I have to tell you, I'm doing this tomorrow with my kids,
10:39cos you've been such a great...
10:40Yes, all right.
10:41Because you're so amazing, we're going to send you there as well,
10:44you're going to have a fantastic day, all right?
10:46Go Ape, Flamingoland, you've been amazing.
10:51Get off, get off.
10:54Right.
10:56OK?
11:00Say goodbye to the dog, it's all right.
11:06Listen, come here, you've been so brave,
11:08your family are utterly amazing.
11:10Look at the camera.
11:11Don't go anywhere, back in a minute, thank you.
11:15She lost her hair, she was on steroids.
11:19This is them now, look at that.
11:21ALL GROAN
11:24The incredible Izzy and her incredible brother Finn
11:26on the Jeremy Carr show.
11:46Thank you very much indeed.
11:47Welcome back and welcome to this morning's very special show
11:50where we're talking to some truly remarkable families
11:52that are incredibly brave kids,
11:54which leads me on to my next guest today.
11:56Mark and Angela are here to share their story.
11:58Two years ago, their beautiful daughter Izzy
12:00was tragically diagnosed with leukaemia.
12:02The couple say that the devastating diagnosis
12:04turned their lives upside down,
12:06not only having a huge impact on Izzy, their daughter,
12:08but also on the rest of the family.
12:11They say she's incredible and they say they've learned so much.
12:15Parents Mark and Angela on the Jeremy Carr show.
12:20APPLAUSE
12:30I have to say, I've met her, she's amazing, isn't she?
12:33She really is, yeah.
12:34Like butter wouldn't melt.
12:36And her brother as well, who, Finn, is amazing.
12:39Mark, Angela, welcome to the show.
12:41First question, why? Why would you do this?
12:44What are you trying to achieve?
12:46Probably to raise awareness about leukaemia in childhood cancer,
12:49so that people know what the journey's like.
12:51I mean, particularly how bad it can be at the start,
12:54and the fact it's...
12:55To get across the message, it's not all doom and gloom.
12:58There is good days.
13:00There is days when you have a bit of normality back in your life.
13:04There is bad times when your life's just upside down,
13:07you don't know what's happening from one day to the next.
13:10But you get through it.
13:12And how old was she when she was diagnosed?
13:14She was only three, so you have all these plans, you think,
13:17plans for the future and things like that.
13:19How did you find out? What was the story?
13:21She'd been a little bit tired probably the week before,
13:24but she was all right, really.
13:26She'd been complaining of stomach pain and leg pain,
13:29but intermittently she'd be fine one minute
13:31and running around the next, and then she'd be a bit clingy.
13:34But there was nothing really obvious.
13:36I mean, you hear about bruising and things like that.
13:39She didn't have anything like that, so there were no signs like that.
13:43We'd made her a non-urgent doctor's appointment,
13:45because I said, I think something's not quite right.
13:48But then on the actual morning that we went to hospital,
13:50she woke up and she was sweating and she couldn't walk.
13:52And just sort of out of the blue,
13:54she'd been to the park the day before.
13:56And so... Swimming as well, didn't she?
13:58She'd been swimming, yeah. She'd been to ballet the day before that.
14:01And so it was sort of from there, we went to the doctors,
14:03made an urgent doctor's appointment.
14:05They thought it might be a chest infection,
14:07so they were going to send us home with antibiotics,
14:09or said, do you want to go and get it checked out
14:11and make sure it's not anything else?
14:14What happened there?
14:15Well, I was worried about pneumonia, weren't we?
14:17Yeah.
14:18So we went there, fearing the worst about that,
14:20thinking, I hope it's not pneumonia.
14:23Went to hospital, they sort of checked her out a bit,
14:26and they sort of asked us to stop in, didn't they?
14:28Yeah, they didn't really say anything to us that night.
14:31Did you stay with her or go home?
14:33Yeah, we stayed with her. You stayed, didn't you, that night?
14:35I stayed. You had to take my son home, didn't you?
14:37A surgeon came and said, we don't think it's appendicitis.
14:39That was something that they were looking for.
14:41And then he mentioned something about a liver being enlarged,
14:44and I went home that night and googled liver enlarged,
14:47and obviously that came up with cancer.
14:49When you get told, was it the next day that you were told?
14:52We were told there was a 50-50 chance the next day, weren't we?
14:55And then a 90% chance later on that day, I think,
14:58so we sort of knew more or less.
15:00Just to that point, everybody knows that cancer,
15:02but the C word, that moment as parents, the three-year-old kid,
15:06what do you feel, every raft of emotion?
15:09You go through everything, you're feeling angry,
15:11you're feeling despair, you're just thinking...
15:13Just don't believe it. I think you're clinging on.
15:15They told us there was a small chance it might be a virus,
15:17so we were clinging on to that, thinking, you know,
15:19she can't be, she was fine the other day.
15:21And also leukaemia, but, you know, we didn't know...
15:24Obviously, everyone's heard of leukaemia,
15:26but we didn't know how fatal it was.
15:28Essentially, in layman's terms, blood cancer.
15:30Yeah, exactly, yeah.
15:32And so you hear all these stories, and we were just thinking,
15:34that's it, you know, she's not going to pull through this.
15:38She started a series of chemotherapy injections.
15:42Yeah, they started straight away, yeah,
15:44so we didn't come home from that.
15:46She lost her hair.
15:48She was on steroids.
15:50As parents, looking at those photographs
15:52and knowing what she's been through, that must be incredibly difficult.
15:55It is, because it's been a long two years.
15:58I mean, obviously, we've had quite a lot of time to get used to it.
16:01At the beginning, we were just emotional wrecks, and now...
16:03You've been ill as well, though.
16:05Yeah, I was about five months, I think it was, before that.
16:09I was diagnosed with melanoma early stage,
16:12so I had two operations, and obviously I'm still getting check-ups,
16:15but at the time, we thought that was kind of the end of the world,
16:18didn't we?
16:20And then, obviously, this put it into perspective,
16:22and we've sort of not really thought about that since.
16:24Where is she at today?
16:26She's doing really well, isn't she?
16:28She's in a good place at the moment, yeah.
16:30If we could have seen two years ago what she would look like now,
16:33it would be great, because at the beginning, she was so poorly.
16:36She stopped speaking, she stopped walking.
16:39It took us a long time to get her walking again.
16:41We just never thought that we'd get our daughter back.
16:44Do you talk... Is she...
16:46We have to be very careful when we're doing stuff like this.
16:48Is she aware of the severity of what she's had?
16:50No, I don't think so at all.
16:52I think she knows she's poorly. Her brother is, though, isn't he?
16:54Finn's really switched up. How old is Finn?
16:56Seven. He's a seven-year-old.
16:58I mean, I heard him talking to one of the producers,
17:01and he's been... I think it's really important.
17:03We always say when we do these shows that, obviously, she's suffered.
17:06Obviously, you guys have been through the wringer, but the siblings.
17:09And Finn's been amazing, hasn't he?
17:11He's been amazing. He's been pushed from pillar to post.
17:13I mean, because of the nature of it,
17:15there's times when he's had a temperature at two o'clock in the afternoon
17:18and we have to rush him to hospital.
17:20This is them now. Look at that.
17:22And we've had to chuck him after school.
17:25Hey!
17:27They're beautiful kids.
17:30They never know. He's had things cancelled.
17:32We can arrange to do something and we'll have to cancel it
17:34when we go into hospital.
17:36So it is really hard for him, and psychologically,
17:38with him being a little bit older, it has really affected him.
17:41They are beautiful kids.
17:43Listen, I'm so grateful that you're here.
17:45She's continuing her treatment.
17:47Yes, she's carrying on. She's doing well through it.
17:49Do you find something in yourselves as parents?
17:51I mean, obviously, you've still got those worries,
17:53but have you found a strength that you didn't know you had?
17:55You do, yeah. You dig down deeper,
17:57especially when things aren't going as well,
17:59or she's been on steroids for five days,
18:01you've not slept, really, for five days,
18:03and you have tantrums.
18:05You just dig deep, sort of knuckle down, get on with it.
18:07Do you find yourself looking for things the whole time,
18:10wondering what the slightest scratch...
18:12I think we always will do.
18:14She's due to finish in about 12 weeks now, which is great,
18:18but there is obviously a chance that it can come back.
18:21So we always, even now, we always look at it
18:23every time she complains of leg pain, stomach pain.
18:26If we find a little bruise, obviously, that's our first thought.
18:29Great parents, though, by anybody's standards,
18:31and I really appreciate being here.
18:33We're going to get them out.
18:35The incredible Izzy and her incredible brother Finn
18:37on the Jeremy Cart Show.
18:51Look at you in your lovely dress. Hello, Finn, how are you doing?
18:54All right. All right?!
18:56You were cool upstairs, weren't you? Yeah.
18:58Do you want to run the show? Yeah.
19:00All right, well, when we finish, you can do the end, all right?
19:03So do you want to hold the microphone? It'll be very important.
19:06How are you, sweetheart? All right.
19:10Finn, you know, I think, and I don't want to give too much away,
19:14but I know that you're aware of what your sister's been through.
19:18How difficult was that for you, pal?
19:20Well, it was quite difficult,
19:23because at the start, everyone's having attention of Izzy,
19:29because they want to see if she's all right.
19:33But you also were such a good boy for your mum and dad,
19:37and you protect your sister, don't you?
19:39Do you think she's been very brave? Yes.
19:42You think you've been brave, don't you, Izzy? Yeah, absolutely.
19:45Daddy's girl? Yeah, she is a bit, yeah.
19:49How good have Mummy and Daddy been, Izzy?
19:56Good, hopefully. What about you?
19:58Have you been good? Has it been difficult sometimes, sweetheart?
20:01Yeah. How do you walk out here with a big smile on your face
20:05when you've been through such a hard time?
20:07You're always happy, aren't you? She's always smiling.
20:10She never ever complains, do you?
20:12Have you had a nice day today? Have you had any chocolate?
20:16Somebody told me that you like princesses, is that right?
20:19Really? OK. I'll tell you what I've got. I hope you don't mind.
20:22I've got some presents for you. Would you like some presents?
20:25If you look that way, some people will bring you some...
20:28Get the presents out!
20:40You've got to put that near him.
20:43Izzy! No, round the back, round the back.
20:46Izzy, look at these, look at these.
20:48These are not for your dad, that's another show.
20:51Come here, which one do you reckon?
20:53Which one do you think? That one?
20:55I think that.
20:57That'd be nice.
20:58Well, I'll tell you why I've got you these and you can have them all.
21:01Do you watch CBeebies? Do you?
21:03Well, there's this amazing place called CBeebies Land Hotel
21:06and it's at Alton Towers Resort.
21:08Have a look, have a look, have a look.
21:11And it's only just opened.
21:13Some of the stars of CBeebies will meet you a day out
21:16and absolutely everything. Is that all right? Do you like that?
21:19Oh, look, look, look!
21:23Stay and everything.
21:25And because you've been amazing,
21:30because you have been the most amazing...
21:32Have you ever heard of Legoland? Yeah.
21:34Just a little bit. We're going to send you to Legoland in Windsor.
21:37Merlin's Magic won Children's Charity.
21:39We're going to send you the characters, the whole thing.
21:42CHEERING AND APPLAUSE
21:48Would that be nice?
21:50Listen, I don't expect you to say a lot
21:52because I know it's difficult with the cameras,
21:54but you've been such a brave young lady
21:56and you've been such a wonderfully supportive brother
21:59and, guys, I don't know, listen,
22:01I've got four kids, I think you're incredible,
22:03but like you said, you have to deal with it, don't you?
22:05And that's the most important thing.
22:07Lots of love and thank you for coming.
22:09Right, come here. Are you going to do this for me? Come here.
22:11Right, what we're going to do is...
22:13Very good girl. Give Izzy a round of applause.
22:15APPLAUSE
22:21After the break, loud voice.
22:23After the break...
22:25More amazing families.
22:27More amazing families...
22:29Don't go anywhere.
22:30Don't go anywhere.
22:32Back soon with the Jeremy Carr Show.
22:34Back soon with the Jeremy Carr Show.
22:37I'm told he's a real handful.
22:39He'll either say nothing
22:41or he'll take over the whole show, is that right?
22:43Yes.
22:44Phrases on the Jeremy Carr Show.
22:46CHEERING AND APPLAUSE
23:16..plus your name to 63334,
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23:30APPLAUSE
23:37Hi, I'm Jeremy, welcome back.
23:38My next guest today, Shelley, is here
23:40with her incredibly brave four-year-old son, Frasier.
23:42Now, he was diagnosed with an extremely rare disease
23:45when he was only 11 months of age,
23:46which changed their lives forever.
23:48Now, despite this, she says that Frasier refuses to be beaten
23:50and he lives his life to the full.
23:52This is, by the way, an amazing young man.
23:54But first, so he can't hear, I want to talk to his mum.
23:57Shelley's on the Jeremy Carr Show. Give her a round of applause.
23:59CHEERING AND APPLAUSE
24:09A little bit.
24:10Really, really pleased to meet you.
24:12I say every time I do one of these parts,
24:14it's just as... He's an amazing kid.
24:16But I make the point that right now he's not in the studio
24:19and he can't hear.
24:20Tell us, really, how you discovered what his illness is
24:24and how bad is the diagnosis, really.
24:26So, when he was around six months old,
24:30we noticed he wasn't meeting any physical milestones,
24:33so he wasn't sitting, crawling,
24:37you know, rolling, any of those things.
24:40And we've got a daughter,
24:42so obviously we could compare how...
24:44The development. Yes.
24:46So, we took him to our GP... Mm-hm.
24:49..and we said, we think there's something wrong.
24:52She agreed, yes, he did feel, you know, floppy.
24:56That was what she said.
24:58So, she referred him to a paediatrician
25:01and we went there and we had the appointment
25:03and it was quite a positive appointment.
25:06She said, I'll take some blood tests just to rule things out.
25:10Those were her words.
25:11We'll give him an MRI scan just to check.
25:14And we had that done, the MRI scan was done,
25:17everything was normal, that came back normal.
25:20And we thought, brilliant, you know,
25:22we were just overprotective parents,
25:24you know, there's nothing wrong with him.
25:26And then I was at work at the time
25:28and I got a call from the paediatrician,
25:30completely out of the blue,
25:32and she said,
25:34I've had some blood test results back for your son
25:37and it shows that he's got a higher CK level,
25:40which meant nothing to me at the time.
25:43And a normal range should be between 50 and 250
25:47and Fraser's were 9,500.
25:53Do you know what that means instantly when you're told that?
25:56We had no idea.
25:57And she said to us,
25:58we've made you an appointment at Great Ormond Street Hospital
26:01for tomorrow and, you know, you have to go to it.
26:05And when someone tells you you have to go to GOSH tomorrow,
26:09you know that's not going to be good news.
26:16We went there
26:18and they told us he had a muscular dystrophy.
26:22Now, he's got DMD.
26:24In layman's terms, Shelley, and thank you so much for doing this,
26:27what does that in essence mean?
26:28You say your world came crushing down.
26:30What does DMD mean?
26:31So, Duchenne is a progressive genetic disorder
26:35which affects one in every 3,500 boys.
26:40It's very much life-limiting.
26:43It's a muscle-wasting condition.
26:45Can we talk about that before he comes in the studio?
26:47Yes.
26:48Because I know you want to talk about that prognosis.
26:50He is how old now?
26:51He's just four.
26:52And what about life expectancy?
26:55So, life expectancy is around 20 to 25.
27:01Because the condition that he has very much, you know,
27:04weakens the muscles,
27:06it will cause eventual paralysis for him.
27:09How do you deal with that?
27:11You just do.
27:12Yeah, but you're amazing.
27:13This woman, right, said,
27:15OK, this is the way it's going to be.
27:17I'm holding down a job, I'm looking after my kid,
27:19and then she went and climbed Mount Snowdon with him
27:21to give him the memory of a lifetime.
27:23You refused to sit down, don't you?
27:26How do you do that?
27:27How do you find it in yourself to do that?
27:30That's why I'm in awe of you for a minute.
27:32I think you can either look at life, you know, one way,
27:35or you can look at it another way, and...
27:37Is that him? That's brilliant.
27:39That's him.
27:40They raised £12,000 for muscular dystrophy doing that.
27:44That's amazing.
27:45Amazing.
27:46Look at him.
27:47You'll never lose that, will you?
27:51Oh, look, you're so right.
27:53You could never take that back, right?
27:55I wanted to give him the feeling of achieving something physical,
28:00because he would never be able to do that.
28:02He uses a wheelchair full-time.
28:04And, you know, I've got legs, they work.
28:08You know, I'm not the thinnest, I'm not the fittest person,
28:11but, you know, I do have... My body works.
28:14And I wanted to give him this experience.
28:17Brilliant.
28:18APPLAUSE
28:20What is, um...
28:21What is today about for you?
28:24What's today about? Why come here and do this?
28:28I just want to raise awareness of his condition.
28:31You know, there's lots of...
28:32Isn't there enough written about muscular dystrophy?
28:34There isn't.
28:35Enough known? No.
28:36There's not a known...
28:37I mean, Duchenne is the most common genetic killer of children,
28:41yet nobody's ever heard of it.
28:43You know, that's not right.
28:44We need to get the word out there about it.
28:46You know, awareness leads to treatments, it leads to cures,
28:50it leads to fundraising.
28:52And, you know, for me, this isn't just about my son.
28:56Everything I've done to date, fundraising-wise,
29:00has gone to help, you know, every child living with Duchenne.
29:04APPLAUSE
29:05Amazing. Amazing.
29:07So, now, is he with a nurse? Yes.
29:09What's the nurse called? Erica.
29:11Right, so he's with a nurse called Erica,
29:13and I'm told he's a real handful.
29:15He'll either go one way, they'll either say nothing,
29:18or he'll take over the whole show. Is that right? Yes.
29:21Please welcome Jeremy Carr-Joe.
29:23CHEERING AND APPLAUSE
29:36Hello, honey.
29:42Thank you, dear, thank you.
29:44How you doing?
29:45I'm all right.
29:46CHEERING AND APPLAUSE
29:50They're clapping you.
29:52Are you going to say hello?
29:54Are you going to say hello, Jeremy Carr?
29:56He's like, hello.
29:59You all right?
30:01I've heard you've been...
30:04I've heard you've been looking at all the girls backstage,
30:07is that right?
30:08Any pretty ones?
30:10Any pretty ones at all, or not?
30:12Yeah. Really?
30:14What, that work here?
30:16Yeah.
30:18You all right? Yeah.
30:21Did you like going up that mountain?
30:23Yeah.
30:24Do you say anything other than yeah?
30:26Yeah.
30:28So, you're a very brave boy, and they think you're amazing.
30:32CHEERING AND APPLAUSE
30:35So, did you, um...
30:37Did you, um...
30:39What's your favourite thing?
30:41What do you like best?
30:43Do you like dinosaurs?
30:45Yeah, dinosaurs.
30:46Yeah, a few of them here.
30:48Sharks?
30:49Yeah.
30:50A few of them here as well.
30:52Um, what about...
30:54I'm just trying to think.
30:56Would you like some presents?
30:59I don't want any presents.
31:01You don't want any presents?
31:03You do or you don't?
31:04I do.
31:05Well, you said your things.
31:07Do you want presents?
31:09Yeah.
31:10You want some presents?
31:12Look, look, look, look, look, look, look, look.
31:18Look at that.
31:20A big dory.
31:21A what?
31:22That's a big one.
31:24What is it? It's a big fish. What's it called?
31:26It's called dory.
31:27It's dory, you idiot!
31:29Do you like dory?
31:30Yeah.
31:31Yeah, right.
31:32Well, I'll tell you what, I'm going to give you something even better now.
31:35Look, where's my piece of paper gone?
31:37I had this blindingly good idea cos you like fish, right?
31:40Would you like to go to Sea Life in London for a VIP date?
31:44No, Sea Life Centre!
31:49This is amazing, right?
31:53So you can go to the Sea Life Centre in London with your whole family,
31:58VIP, behind the scenes, and you can see everything.
32:00You can do whatever you want. Would you like that?
32:02Yeah.
32:03That's yours, young man. You're amazing.
32:05You could have taken the label off.
32:07What's wrong with you people?
32:09You want the label taken off?
32:10Yeah.
32:11Get the label off. Come here.
32:13On a seat. All he wanted was the label off.
32:16God, prove you're strong. Is he useless?
32:19Yeah.
32:20Yes!
32:21Say you're useless.
32:23You're useless!
32:25Get off it. Useless. Useless.
32:30Listen, we're going to put some stuff on the website.
32:33I think you make a very good point.
32:35I know we had our serious chat and I think awareness is massively important.
32:38Emma, I hope you love your day at the Sea Life Centre
32:41and I hope you like your presence and you are a wonderful young man to meet.
32:44Thank you for coming on.
32:45You watch when I say to them, when you look out,
32:48this applause is all for you.
32:50Fraser, ladies and gentlemen.
33:02What a truly remarkable little boy and what an incredible mum.
33:05Good luck to them.
33:06Yesterday, Emma says that when her nine-year-old daughter Tilly
33:09was just 15 months of age, she fell into a bath of scalding hot water,
33:12leaving her with 85% burns.
33:14Now, this has resulted in Tilly having over 600 operations
33:18and she even had to have her leg amputated.
33:20Now, despite this, Mum Emma and great-grandmother Christine
33:23say that Tilly is an absolute inspiration.
33:25Let's get them out so we can hear more.
33:27Emma and Christine are on the Jeremy Carr Show.
33:30APPLAUSE
33:37How are you?
33:41How are you, love? Nice to meet you.
33:45Thank you for coming. Why did you come here?
33:47Just to make people aware of burns and scalds and...
33:52Are you OK? Because I think people need to hear this story.
33:56Will you take us back to that day?
33:58Because I just want to say one thing.
34:00This could have happened to anybody and I know why you want to do it
34:03and I know that you've been consumed by all sorts of emotions
34:06over the last however long, but tell them the story, sweetheart.
34:09It was just a typical Sunday
34:12and I would be downstairs with the children
34:15and I'd clean up downstairs and then would always go upstairs
34:18and I would phone my nan on a Sunday
34:21because we normally go to yours for Sunday dinner back then
34:24and got off the phone and one of them had an accident
34:29because they were poorly and it was on a beanbag
34:32so I picked them up and just put them next to the sink.
34:36You threw the beanbag? Yeah, I just chucked them in
34:39and I said to the boys, because normally I'd take all three kids with me
34:43to the toilet, to the kitchen, everywhere.
34:46I'd never leave them alone.
34:48And this once, I thought, she's happy playing.
34:52People keep telling me that you don't take your children
34:55in one room and into another.
34:57She was 15 months of age, wasn't she? Yeah.
34:59She climbed up on that beanbag?
35:01And fell into scalding water.
35:05You said that you heard a scream.
35:08She was rushed to hospital.
35:10Her skin was literally peeling off and you were in hysterics.
35:13They put her in an induced coma.
35:18I'm not going to ask you what you feel when you look at that
35:21because I'll tell you what I want to say to you.
35:23I can't believe that you're brave enough to be here
35:25and I'm sure that every single day you've beaten yourself up
35:28but, darling, you shouldn't because that could happen to anybody
35:31and I know what a great mother you are and I really want to say that, OK?
35:42You were told she wouldn't survive the next 24 hours,
35:45but this girl...
35:47How brave is this girl? She is so brave.
35:50We know quite a few brave people who've been at the hospital
35:53but she's just outshined, she's just amazing.
35:56Nothing ever gets her down.
35:58She's had over 600 operations.
36:01She loves going to theatre and she can't wait and nothing...
36:0616 months ago you were hit with even more.
36:08Yeah, she lost a leg.
36:12She's just incredible, though, right?
36:15Yeah, she really is. She wanted it off.
36:17She just said, take it away.
36:19She said, bye-bye, leg, you're going to heaven?
36:21Yeah. Seriously? Yeah.
36:23Give me the injection. Come on, let's get on with it.
36:25When she came out of the surgery,
36:27she was awake for a couple of seconds, weren't she, on and off,
36:30and she just pulled the blanket back and went...
36:33My little leg's come off and it's, like, flapping around and...
36:36Yeah.
36:37How do you describe this girl?
36:39Just amazing. I don't think we've got words to describe her.
36:42She's just absolutely amazing.
36:44She's learnt to walk again? Yes.
36:46And the one thing I've learnt doing this...
36:48Here she goes.
36:56Jump!
36:57Jump!
36:58And up again.
36:59That was good, Chills.
37:01Jump!
37:02Jump!
37:03Jump!
37:04Jump!
37:06She doesn't feel sorry for herself.
37:08You said, for a mother to say that,
37:10my kid of nine is my inspiration, but she's so brave
37:12and you couldn't be prouder of her, and that's really important.
37:15She really is my inspiration, yeah.
37:17She's my hero, and that's what she is.
37:20She's just a hero.
37:21Don't blame yourself.
37:22APPLAUSE
37:25So, is she coming out?
37:27Yeah.
37:30Les Germantilles on The Jeremy Cowell Show.
37:32Well done.
37:33APPLAUSE
37:53Are you all right, sweetheart? I feel like it.
37:56How are you? You look like your...
37:58How much do you look like your mum?
38:01Now, listen, um...
38:03Now, I've heard a little rumour, see.
38:05I've heard that you are a bit of a pop star.
38:09Are we saying yes?
38:11Haven't you got your own band?
38:13Yeah.
38:14Oh.
38:15What are they called?
38:17Little Skips.
38:18Little Sticks?
38:19Skips.
38:20Have you got, um... Have you got a recording contract?
38:24Have you played a gig?
38:26Who's your favourite band?
38:28Little Mix.
38:29Who?
38:30Has everyone in the audience heard of Little Mix?
38:32Yes.
38:33Do you like them?
38:34Do you?
38:35Is that where you want to be one day? Do you want to be a pop star?
38:38So I thought I'd do something a little bit different,
38:41because I thought if you want to be a pop star,
38:43I should give you a day to remember.
38:46So I'm going to send you for a pop star experience day
38:49at one of the UK's leading recording studios, OK?
38:52Listen, we're going to record everything you sing.
38:55They'll mix it all professionally.
38:57You can demand whatever you want to eat.
38:59Bring me my food, bring me this, bring me...
39:02They will film it, they'll lay down your track,
39:05they'll do a CD, they'll do absolutely everything,
39:08and you can make your own record,
39:10and then you can play it to your friends
39:12and we'll see if we can get it on a record.
39:14APPLAUSE
39:18Do you know who used that studio a couple of weeks ago?
39:22Harry Styles.
39:24And I guarantee that you're going to use the same headphones
39:28and microphone as Harry Styles.
39:30Do you know Harry Styles, Mum? Yes.
39:32Do you like Harry Styles? Mum's gone a bit weak.
39:34There we go, there we go.
39:36So the thing is, so I thought you could lay down your own track
39:39and you could do all of that,
39:41and then I want to do something else for you.
39:43So I'm going to send you the best tickets to go and see Little Mix.
39:46Would you like that?
39:48APPLAUSE
39:53You're a very brave girl.
39:55Are you nervous out here?
39:57No. No?
39:59Is there anything else you'd like to add?
40:01No. Do you want to sing a song?
40:03No? No.
40:05Do you want to see Steve, Big Steve?
40:07Oh, Nan does. Nan does.
40:09Get Big Steve. Get Big Steve instantly.
40:12Forget the presents, Nan wants Big Steve.
40:14Ladies and gentlemen, Big Steve.
40:16Give him a round of applause. There he is.
40:18APPLAUSE
40:20See? Nan's back. Look, Nan.
40:23Oh!
40:28Oh, do you know what?
40:30Do you want him to take you to the recording studio, Big Steve?
40:33Look after you for the day, a bit of security.
40:35Just in case you've got some family.
40:37See, Steve? She wants you to stand outside the door
40:40of the recording studio like that,
40:42just like Little Mix have their own security.
40:44You're amazing and I think your mum and your nan are as well
40:47and I'm really, really pleased to meet you, all right, sweetheart?
40:50Have a good day and enjoy Little Mix.
40:52Go that way. Give them a round of applause.
40:54Thank you. Thanks, guys.
40:56See you later.
40:59Lovely girl, lovely family and more from the Jeremy Carr Show after this break.
41:02Don't go anywhere.
41:04I hate bullies and I hate people who don't accept people for what they are
41:08and you are one of the bravest guys we've had.
41:10It's a pleasure to work with you.
41:12APPLAUSE
41:21CHEERING
41:25Thank you very much indeed.
41:26Welcome back to a very special episode of the Jeremy Carr Show.
41:29Right, coming up next, I'm about to be reunited with an old friend of mine
41:32who I haven't seen in seven years.
41:34I first met Ashley when he was a guest at just nine years of age.
41:37It was an amazing moment. Take a look at this.
41:41This little boy is nine. How many operations has he had?
41:44Over 30 procedures, 15 of them being big operations.
41:48He's the life and soul of the party there, right?
41:51Yeah. Yeah, he likes karaoke.
41:53He's very confident.
41:55There's a troupe, a group called...
41:57Basically, it's the Rat Pack, live from Las Vegas,
42:00and they're performing tonight in Newcastle, OK?
42:03We are going to get you at that show, but better than that,
42:06they are going to do a one-off for you this afternoon.
42:08They're going to do a masterclass, they're going to teach you some moves.
42:11You're all dressed up and absolutely sorted
42:13and you are going to be in the Rat Pack. What do you reckon?
42:16The boys are here. Come and say hello.
42:18Frank, Ashley. Dean, Ashley.
42:21How you doing? Sammy, Ashley.
42:23Pleasure to meet you.
42:24Guys, this is your domain.
42:25I'm going to sit down there with his mum and dad and watch.
42:28Just take him through some moves and some songs.
42:30Are you up for that?
42:31HE SINGS
42:37HE SINGS
42:47APPLAUSE
42:53Many things have changed.
42:55This young man is now 17 years of age
42:57and he's back to talk about his life as a teenager
43:00with Treacherous Collins Syndrome.
43:02Looking forward to just meeting up with a truly amazing man,
43:04because we do these shows all the time,
43:06but to meet somebody after all this time is absolutely amazing.
43:09You've got to give him a big welcome.
43:11Ashley's back on the Jeremy Carr show.
43:13CHEERING AND APPLAUSE
43:23Look at you! What's going on here?
43:26How are you? Good, thank you.
43:28Looking smart, son. Thank you.
43:30How's it been?
43:32Good.
43:34I know that we do these inspirational shows every year,
43:37but to meet somebody several years down the line is wonderful.
43:42You said, I'm back to show Jeremy how far I've come.
43:45Yeah.
43:46I mean, we can talk about the 30 operations,
43:49but I'd like to talk about school and the difficulties you had,
43:52because I know there's a campaign that you're involved in.
43:55Um, yeah. Um...
43:58Sorry. Um, when I...
44:01You're OK. Look at me.
44:03How difficult was it? Hard.
44:06To go home every day crying to my parents was really hard.
44:11Yeah, really hard.
44:13Did friends and family and people stand up for you?
44:16Yeah, mainly my family.
44:19I met them many years ago. It's so good to...
44:21What's your brother called? Bradley.
44:23We've got Mum Louise, Dad Michael and Brother Bradley
44:25on the Jeremy Carr show. That way.
44:27CHEERING AND APPLAUSE
44:34You've all changed.
44:37Good to see you.
44:39You're looking a day older.
44:41Hi, Dad. You all right? Yeah.
44:43Um, I remember last time like it was yesterday.
44:47Um, how difficult?
44:49He says it's been very difficult, the bullying.
44:51That must be difficult as parents as well.
44:53Ashley wasn't always honest with us, didn't tell us all the time.
44:57Um, it was only really in the latter of the years
45:00that he really came out and told us how bad it was.
45:04I think people's reaction sometimes is out of ignorance.
45:08I think it's out of fear.
45:09I think it's because they don't know what to say or what to do
45:12and so they just go into themselves
45:14and come out with it in the wrong way.
45:16That's the reason for doing shows like this.
45:18Brad, how proud are you of your brother?
45:20Quite proud. Quite proud, just quite.
45:23Is he proud or not? I don't know.
45:25He is. Yeah, he is. He loves his brother.
45:27He does. They get on really well.
45:29A bit of bickering, but...
45:31That singing last time, that was impressive, wasn't it?
45:34Yeah. See how young I looked last time?
45:36Some people in the audience have been shouting,
45:38you look younger than you did then, Carl, but that's another story.
45:41I've decided I'm going to be terribly generous to you today
45:43cos I want to give you lots of gifts and make you smile a lot.
45:45We're going to send you and your family on the VIP tour
45:48of Coronation Street. It's the best one in the world.
45:50We're going to do all of that at the studios.
45:52We're going to go to... All of it. Everything.
45:55Now, also, Google have been very nice.
45:58We have to say thank you to Google.
46:00We've provided you with a brand-new Chromebook
46:02to assist you with starting college.
46:04Thank you. Who do you support?
46:06Chelsea. Four tickets to any home game.
46:08Best seats in the house, any home game for Chelsea.
46:11I wouldn't be going for Chelsea.
46:13Chelsea, right?
46:15So...
46:17So, Chelsea, Coronation Street, the thing...
46:21And then I was just thinking I ought to do something else.
46:24And then I was thinking about...
46:26How many years ago was it that you sang that song?
46:28I've got a surprise for you. Look over there. Look that way.
46:33APPLAUSE
46:35What has he done?
46:38He done himself
46:40And he has done
46:43To say the things
46:46He truly feels
46:48You know, Dean, I realise we're missing Sammy here.
46:50We need some help.
46:52Hey, Ashley.
46:54That record shows
46:57I took the blows
47:00And in my life
47:07CHEERING
47:13My life
47:21CHEERING
47:31And also, cos we think you're amazing, you'll love this,
47:33we're going to send you on an exclusive trip to London.
47:35You can go to the West End Theatre with your family,
47:37stay in a hotel and go to any show you want, OK?
47:40Listen, I hate bullies
47:42and I hate people who don't accept people for what they are
47:44and you are one of the bravest guys we've had
47:46and it's a pleasure to have you back.
47:48Look.
47:50Look at that, OK?
47:54Sean?
47:57One thing.
47:59What would you say...
48:01What would you say about bullying?
48:03To finish.
48:05Don't do it. It's a nasty thing to go through.
48:07When I went through it, it was horrible.
48:10And if you're being bullied right now and you're watching this,
48:12what would you say?
48:14Don't be. You're not alone.
48:16You've got family, friends who actually care for you and support you.
48:19Tell somebody, right?
48:22Give them a round of applause.
48:24Take a seat.
48:26I've always wanted to do this. Come here.
48:28You two, come here.
48:30What an amazing morning, as I'm sure you agree,
48:32a real honour to meet such incredible families.
48:34I am for this morning out of sun. Thanks for watching. Goodbye!
48:37CHEERING AND APPLAUSE
48:51This programme contains strong language and adult humour.
48:54If used correctly, it is supposedly offensive.