పసిప్రాణాన్ని పీడిస్తున్న ప్రాణాంతక వ్యాధి
Child Suffering With Rare Disease Needs Help: పల్నాడు జిల్లాలో ఓ పసిప్రాణాన్ని జన్యుపరమైన వ్యాధి పీడిస్తోంది. ఈ వ్యాధికి ఇచ్చే ఇంజక్షన్ ఖరీదు రూ.16 కోట్లు అవుతుందని వైద్యులు తెలిపారు. అయితే ఆ పసివాడిని కాపాడుకునేందుకు ఆర్థిక స్థోమత లేకపోవటంతో తల్లిదండ్రులు కన్నీరుమున్నీరు అవుతున్నారు. దాతలు, ప్రభుత్వాన్ని సాయం కోరుతున్నారు.
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00:00The parents were shocked to see a 6-year-old boy with a life-threatening disease in front of their eyes.
00:07The two sons of Sheikh Yasin and Sheikh Shareen Dampath, who came to the 4th ward of Panasatota in Narasaravapeta, Pallnadu district, are private workers.
00:16Sheikh Yasin is a private worker.
00:18The parents, who noticed that the second son, Jayan, had a neck sprain at the age of 3 months and his legs and hands were not moving, showed him to a private hospital in Vijayawada.
00:26They did some tests and recommended him to Hyderabad.
00:30There, after doing tests in another private hospital, the doctors determined that he had a life-threatening spinal muscular atrophy.
00:37The doctor said that he is currently in type 1 and that he should use the injection he bought by the 7th.
00:42He said that it would cost Rs. 16 crores.
00:45With this, the parents of the boy died at once.
00:49According to the government, the boy's life is worth 30% if injected.
01:07The boy is having trouble sitting, swallowing and breathing due to the disease.
01:12According to the government, the parents of the boy are asking for help.
01:18My son's name is Jayan.
01:20He is six months old.
01:22He has a spinal muscular atrophy.
01:24My son is in type 1.
01:26Type 1 is a life-threatening disease.
01:30If we don't give him the vaccine within a year, his life will be in danger.
01:35This vaccine costs Rs. 16 crores.
01:38This is a novelty company.
01:41It is not available in India.
01:42We have to import it from another country, USA.
01:45We are asking the government to give us the injection.
01:49We are asking for a certificate.
01:52If we get some amount, we will be able to use the vaccine.