(Adnkronos) - In questo numero:
"Le avventure nel barattolo", il cancro al seno metastatico raccontato ai figli
Al via Campagna Parkinson Italia per far conoscere “una malattia che è 100 malattie”
G7 Salute: strategie contro antibiotico-resistenza e il Villaggio di Fism
Aisla lancia ‘Una promessa per la ricerca’
E ancora
Robot “single port” facilita la chirurgia di precisione, Ifo prima realtà del centro Italia a dotarsene
Sclerosi multipla, Sandoz lancia il progetto ‘Su misura’
Nuova opzione terapeutica per il linfoma diffuso a grandi cellule B
Ipertensione arteriosa polmonare, presentata a Roma campagna di disease awareness promossa da Msd
Otsuka celebra i suoi 50 anni in Europa
"Le avventure nel barattolo", il cancro al seno metastatico raccontato ai figli
Al via Campagna Parkinson Italia per far conoscere “una malattia che è 100 malattie”
G7 Salute: strategie contro antibiotico-resistenza e il Villaggio di Fism
Aisla lancia ‘Una promessa per la ricerca’
E ancora
Robot “single port” facilita la chirurgia di precisione, Ifo prima realtà del centro Italia a dotarsene
Sclerosi multipla, Sandoz lancia il progetto ‘Su misura’
Nuova opzione terapeutica per il linfoma diffuso a grandi cellule B
Ipertensione arteriosa polmonare, presentata a Roma campagna di disease awareness promossa da Msd
Otsuka celebra i suoi 50 anni in Europa
Category
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NewsTranscript
00:00In this issue, the adventures in the jar, the metastatic breast cancer told to children,
00:17Alvia campaigns in Parkinson, Italy to make known a disease that is 100 diseases, G7 health,
00:25anti-antibiotic resistance strategies and the village of FISM,
00:30AISLA launches a promise for research, and again,
00:35Robo single port facilitates precision surgery, IFO first reality of the center Italy to get it,
00:43Sclerosis multiple, Sandoz launches the project on measure,
00:47pulmonary arterial hypertension, presented in Rome, campaign of disease awareness, promoted by MSD,
00:56Otsuka celebrates its 50 years in Europe.
01:05How to communicate to the youngest in the family the experience of a metastatic oncological disease?
01:10It's called the adventures in the jar, the illustrated novel published by Gilead,
01:15in which Nea and Sofia, together with their parents, decide that the mother's disease, the metastatic breast cancer,
01:21will not prevent them from living beautiful and magical adventures.
01:25In a jar will be put some notes that will be taken to give life to desires.
01:30So begins the story born from the experience of Lauren Huffmaster, a mother with metastatic breast cancer,
01:36in line with what Marie Curie said, among the most famous women in history,
01:40in life nothing should be feared, well understood.
01:43This is just a little flower, a very thin sword,
01:48the way a brave mother can fight to give hope to her children,
01:55to tell them a story that is not just that of the cures,
01:59and that of the holidays that maybe can not be done because the mother is not well.
02:05Gilead has chosen the Festival of Heritage of Women in Florence,
02:09to present in preview the book, which will soon be available for free.
02:13The theme on how to communicate the metastatic breast tumor to children is very current,
02:17but little debated, and what happens next?
02:20How to deal with the most complex moments that therapies involve?
02:24It's a bit of a map that guides people who live this experience,
02:30in search of reference points, such as the jar.
02:36The jar is something reassuring because it contains symbolic contents,
02:44let's think of the sea star, let's think of a part of the meteorite,
02:50that is, they are all small pebbles, like in the fables of Hansel and Gretel,
02:56that leave a memory of the things done, especially those done together.
03:07Parkinson's is not a disease, but a hundred.
03:10Next to the tremor, which is by far the best known symptom,
03:14there are more than 40 that combine with each other,
03:17in a different way and intensity in each person.
03:20It can therefore be said that today in Italy there are at least 300,000 Parkinson's,
03:25one type for each patient.
03:27In fact, they can also feel the mood, sleep and digestion,
03:31in all cases, however, a point emerges, the desire to react to the disease.
03:35Thus, at the center of the new institutional campaign of the Parkinson's Italy Confederation,
03:40made with the unconditional support of Zambon,
03:43launched on the occasion of the national day dedicated to Parkinson's,
03:48there are Carla, who is dedicated to sports climbing,
03:51and Paolo, who has learned to fly everywhere with his simulator,
03:55while Valentina has become a mother and Massimiliano spreads music and new ideas on the radio.
04:01These are just a few stories of patient reactions
04:04that testify to how Parkinson's is a disease,
04:07which is 100 diseases and which inspire the campaign,
04:10advertising subjects and the social spotlight that will go on in 2025
04:14with the voices of Claudio Bisio and Lella Costa.
04:17The great complexity of Parkinson's is in fact undervalued by most people,
04:22underlines Giangi Milesi, president of the Parkinson's Italy Confederation.
04:27One of the prejudices surrounding Parkinson's
04:29is that Parkinson's is a disease of the elderly and tremors.
04:34Instead, it has many faces that we want to highlight
04:38because the more competence, knowledge of the disease,
04:42the more there is the possibility of doing an early diagnosis.
04:46What we can see is that there are many cases
04:50in which a correct, esartorial, we even call it,
04:56pharmacological treatment is supported by lifestyles,
05:01which are lifestyles that are good for everyone, among other things.
05:05So food, sleep, movement, sports activity.
05:11If we can keep our attention high on all these aspects,
05:18including interest, including preventing Parkinson's
05:22that encloses us in an isolated corner,
05:25life stretches out and could even surprise us.
05:32What we are also interested in highlighting with this campaign
05:36is the possibility of reacting to pain, to suffering,
05:41with initiative, with generative activities.
05:46We have many stories of people reacting to the disease
05:50discovering qualities and being able to be more creative.
05:55Parkinson's is the fastest growing neurodegenerative disease,
06:00with prevalence that has doubled in the last 25 years
06:03and is characterized by a multiplicity of symptoms
06:06ranging from muscle rigidity to slowness, tremors and rest,
06:10up to effects on mood, sleep, digestion, skin and smell.
06:15Although it generally arises after 50 years, in 10% of cases,
06:19for genetic reasons, this can also happen at a young age.
06:23A complexity of manifestations that, as evidenced by Professor Paolo Calabresi,
06:27Director of the Complex Operative Unit of Neurology of the Polyclinic Gemelli di Roma,
06:32makes it difficult to manage the disease on a daily basis.
06:35The approach to Parkinson's patients must be holistic.
06:41Certainly symptomatic drugs are important,
06:46so the contribution of competent neurologists is fundamental,
06:51but the role of non-pharmacological therapies is still very important.
06:58It is important, for example, to inform patients and caregivers
07:04of how important, especially in the initial phases of Parkinson's disease,
07:09physical activity in the form of aerobic walks
07:13three times a week, 30-45 minutes,
07:18has a fundamental role, even comparable to the therapeutic effect
07:23of the drugs we give on a daily basis.
07:26Isolation and depression have a negative role
07:30and therefore it is important to have family activities
07:34that make these patients participate,
07:37but also associative life,
07:39which allows our patients with Parkinson's disease
07:42to be together, to understand what can be done for the disease,
07:47but also to take care of other things,
07:50dance, theatrical activity,
07:53but it has also been recently seen that listening to music,
07:58painting, has a significant impact on quality of life.
08:04Parkinson's numbers are destined to increase
08:07also because of the progressive aging of the population
08:10and which highlight the urgency to give concrete answers,
08:13explains Rossella Balsamo,
08:15Medical Affairs and Regulatory of Zambon, Italy and Switzerland.
08:20It is now 10 years that Zambon concentrates its efforts in neurosciences,
08:26especially in terms of research,
08:29and in the field of neurosciences, precisely Parkinson's disease,
08:33with the aim of improving the quality of life of patients.
08:37We realize that Parkinson's disease is strongly debilitating
08:42and therefore it is important for us to contribute to highlight
08:47the impact of such a complex disease,
08:49which still today unfortunately accompanies false beliefs
08:53that minimize the real difficulties of the disease.
08:57This is in line with the sensitivity of our company,
09:01so the campaign of the Parkinson's Confederation in Italy
09:05goes perfectly in this direction
09:08and hence our commitment to support them in this direction.
09:20The presentation of the G7 health event on the subject of antibiotic resistance
09:23will take place soon at the Ministry of Health in Rome.
09:28An event presented by the same Deputy Secretary of Health,
09:32Marcello Gemmato, will take place in Bari on November 28th and 29th,
09:36and which is placed as a natural evolution of the debate
09:40on what has now been declared a global health emergency,
09:44and not only national.
09:46In Bari, representatives of the institutions,
09:48civil society and the scientific world will therefore discuss the prospects
09:53in the field of interdisciplinary collaboration, research and innovation
09:58to effectively address this type of emergency.
10:01With the electronic tracking of the movement of antibiotics,
10:05we are able to track each antibiotic movement on time,
10:0946.7% of the use has been reduced in the farms,
10:15and therefore in the zootechnical line of antibiotics.
10:18MEF has invested 21 million euros in the so-called push and pull mechanism,
10:23taking the opportunity to promote research in innovative antibiotics
10:27that can cure the Italians and the citizens of the world.
10:31In the law of balance, 100 million euros are provided
10:35for the so-called reserve antibiotics,
10:37that is, those antibiotics that cure resistant strains.
10:40During the meeting on G7, the village of health was also presented,
10:44which will always open in Bari from November 29th to December 1st.
10:48An initiative dedicated to prevention and health education,
10:52strongly desired by the FISM, the Federation of Italian Medical Scientific Societies,
10:57and carried out in collaboration with the Ministry itself
11:00and with important institutions in the field.
11:03These are three days dedicated to screening, visits and information,
11:09information that we will keep within workshops.
11:12We have made a 50-square-meter ambulatory inside the village,
11:17where it will be possible to do counseling for psychological well-being,
11:21counseling for male and female health,
11:24and where we will also make multi-specialist visits
11:28for screening in frequent diseases such as diabetes, hypertension, obesity,
11:35chronic kidney disease and heart failure.
11:39The Ministry of Health will be present with its own stand
11:42dedicated to the promotion of healthy lifestyles
11:45and to the campaigns launched for the responsible use of antibiotics,
11:49vaccination against influenza and the donation of organs and tissues.
11:53It will also be possible to donate blood at the stand
11:56carried out by the National Blood Center in collaboration with Avis.
12:05With a live streaming on YouTube and on social media,
12:08which allowed viewers to interact and comment,
12:11AISLA, the Italian Association for Amyotrophic Lateral Sclerosis,
12:15has gathered in the event a promise for research.
12:19Great sports characters, shows, journalists, institutions,
12:24researchers and clinicians to network in the fight against SLA,
12:28an invalidating degenerative disease.
12:31This initiative is the promise.
12:33The promise to undertake a commitment of closeness,
12:37but above all to raise funds for research.
12:40Research is the only possible way
12:42to get rid of this terrible disease.
12:45The program, rich in interventions and testimonies,
12:48has put at the center the strength of a common commitment.
12:51The dialogue between associations and institutions
12:54is essential to meet the needs of people with SLA.
12:58Institutions, private-social, private, world of professions, research,
13:03all together we must give those answers that are still missing.
13:07The government considers this a priority.
13:10People affected by SLA are the weakest among the weak,
13:14they have little time and for this reason they need many, many, many operators
13:21and certainly for us, obviously, giving answers means
13:26taking care of them, taking care of their families.
13:29The evening opened the campaign to raise Christmas funds
13:33in support of scientific research,
13:35the only hope for a future without SLA.
13:38Two years ago there was a real turning point.
13:41SLA is a rapidly progressive disease.
13:45For the first time it was possible, in this small percentage of people with SLA
13:50who have a sub-tumor mutation, to stop the disease.
13:54So it is possible to look for new ways
13:58and these new ways are based now, for the first time, on scientific knowledge.
14:04The level is growing month by month,
14:06there is not a week without a new acquisition.
14:09The moment will come when this acquisition of topics
14:13will certainly lead to new therapies.
14:15I believe in it, but not with a generic hope,
14:18I believe in it because the knowledge is increasing to such a level
14:21that this will happen sooner or later.
14:23The associations of patients like AISLA collect,
14:27welcome and spread the needs and needs of people affected by a disease.
14:33Cures at home must be organized wisely around the needs.
14:38The health aspect is certainly a characteristic element that characterizes us,
14:44but it must not be the priority aspect.
14:48It gives the agenda of priorities,
14:50but we need to be framed as people.
14:54Only in this way can we go beyond the disease,
14:58so we have dedicated paths for those who know what to do,
15:02without if and without but.
15:09It has been tested a few months ago in the operating rooms of the IFO's IRCS,
15:12the Regine Elena Institute in San Gallicano,
15:14the most innovative robotic platform,
15:16the Da Vinci single-arm robot, also called single-port.
15:19More than a hundred major oncological surgery interventions
15:21have already been carried out with this technology.
15:23The IFO is the first reality in central Italy to use it.
15:26It is the first national center to equip itself with this cutting-edge platform,
15:29which, together with three multi-port robotic systems already present,
15:32contributes to increasing the surgical activity of precision
15:35with a technology that is radically changing the perspective of life of people.
15:39At the IFO, in fact, there are more than 6,500 surgical interventions per year,
15:43of which 1,500 robotic,
15:45an activity in continuous growth,
15:47which, thanks to new techniques and surgical robots,
15:49has allowed to completely transform the scenario peri-operatory,
15:53having a qualitative impact on the patient's health
15:55during and after the surgical intervention.
15:57To underline this is Enrico Vizza,
15:59Director of the Department of Clinical and Oncological Research
16:02of the Regine Elena Institute in Rome.
16:04What you see next to me
16:06is the new robotic platform SP, single-port,
16:11which is the latest evolution of robots,
16:14because, through a single incision of 2.5 cm,
16:20it manages to enter the abdominal cavity and the thoracic cavity
16:26with instruments of a few flexible millimeters.
16:31This allows high-complexity interventions
16:36through a very small incision,
16:39to the advantage of the recovery of the patient.
16:43From a surgeon's point of view,
16:45this type of robotic platform,
16:48thanks to the much smaller instruments,
16:51allows a kind of micro-surgery,
16:55therefore a much more precise dissection
16:59with much smaller instruments.
17:01A surgery that we define not of the hands,
17:06but of the fingers,
17:08because the individual instruments
17:10that we are going to introduce
17:12through this small incision
17:15will work like the fingers of a hand,
17:18that of the surgeon, on tissues and organs.
17:21Thanks to a flexible optical system
17:23and instruments of a diameter lower than the classic robotic ones,
17:26the single-port platform is therefore closer to micro-surgery.
17:29Moreover, the robotic arm has no spatial links,
17:32can rotate 360 degrees
17:34and move freely inside the abdominal and thoracic cavity,
17:37with a higher flexibility of use
17:39than the four-arm multiport platforms.
17:42All this allows to use it also for transvaginal, transanal surgery
17:46and not only, as shows Giuseppe Simone,
17:48director of urology of the Instituto Regina Elena.
17:51We are ready to start the partial nephrectomy intervention,
17:54which consists in the transportation of this mass of the kidney
17:57with a single-port access,
17:59that is, a single access through which we perform
18:02an assisted robotic surgical intervention.
18:04And this is the final result of the surgical intervention
18:07of partial nephrectomy,
18:08two mini incisions,
18:10one through which we inserted all the instruments
18:13and this is a working door used by the assistant
18:16to irrigate the surgical field.
18:18It is the main application that we are using,
18:21that of the renal conservative surgery
18:23together, clearly, with the radical surgery of the prostate tumor.
18:33In Milan, the perceptive recommendations
18:36developed in the scope of the project SUMISURA
18:39promoted by Sandoz,
18:41is made in collaboration with the Italian association
18:43Sclerosi Multipla and NABA,
18:45the new academy of fine arts,
18:47through the projects taken care of by the students
18:49of the triennium in design
18:50and the specialist biennium in interior design.
18:53It does not always happen to see projects like these
18:57supported by a pharmaceutical company.
18:59The pharmaceutical company is, in general,
19:01the life science department of the industries,
19:04but it must take into account what its purpose is,
19:08that is, to find answers open to the needs of people,
19:12to the needs of patients,
19:14which are not limited only and exclusively
19:17to aspects of drug supply.
19:21Our purpose is to make available
19:24as many drugs as possible,
19:26but to bring answers to the needs of people,
19:30of patients, in this case of people
19:33who live with multiple sclerosis.
19:35SUMISURA has been a fundamental element
19:38in which the company has played its social role,
19:42that is, to coagulate excellences in the field,
19:47such as the new academy of fine arts,
19:51to try to bring concrete answers
19:56to patients and their quality of life.
20:01In the living room, soft shapes, natural materials,
20:04warm colors and subdued lights.
20:06In the room, it is better to create contrast
20:08between the colors of the walls, the floor and the ceiling
20:10and to avoid reflective surfaces and large-scale mirrors.
20:14In the bathroom, a shower with the floor
20:16and panels with a fan.
20:17These are some of the suggested recommendations.
20:20In this proposal that was made to us,
20:22we immediately saw the possibility
20:25to formulate guidelines,
20:27but not related to the geometry of the space
20:29in which there are full manuals,
20:31but related to the perception of space.
20:33So, we immediately had this intuition
20:37and we worked with patients affected by sclerosis,
20:42who helped us to test on our body,
20:47with our, I say, my and the students of the laboratories
20:51who participated in this fascinating project,
20:55simulating the first symptoms of the pathology.
20:58So, it was a path that immediately had
21:00an experiential approach,
21:02aimed at falling into this dimension of pathology
21:07to then find the most suitable
21:10conceptual and perceptual answers.
21:12The aim of the project on measure
21:14is to suggest useful strategies
21:16to improve the quality of life
21:17of people with multiple sclerosis,
21:19not only from home.
21:21From a recent survey made in 2023
21:24by our association,
21:26it emerged that about 20% complained
21:29about the problem of non-accessibility
21:31within their homes
21:33and 5% identified this problem
21:36as a really shocking problem.
21:38On measure, it writes a new concept
21:41that breaking down architectural barriers,
21:44having an auxiliary,
21:45having a rethinking of internal spaces,
21:49everything can be done
21:51without going beyond what people want.
21:55So, the beauty can also exist
21:57in the measures of breaking down
21:59architectural barriers.
22:07There are about 30,000 people in Europe
22:09affected by pulmonary arterial hypertension,
22:12of which 3,500 in Italy.
22:14It is a rare condition,
22:16progressive and invalidating,
22:18little known,
22:19characterized by an increase
22:21in blood pressure in the pulmonary arteries
22:23with the consequent fatigue of the heart.
22:25With the intention of increasing
22:27knowledge and awareness
22:29on this serious clinical condition,
22:31MSD, with the sponsorship
22:33of the Association of Ill People with Pulmonary Hypertension
22:35and the Italian Association of Pulmonary Hypertension,
22:37launched the campaign entitled
22:39Al cuore del respiro,
22:41pulmonary arterial hypertension,
22:43know it in depth.
22:44The commitment of MSD Italy
22:46is a concrete commitment
22:47that today focuses its reflectors
22:49on a communication campaign
22:51on the correct information,
22:53precisely because still today,
22:55unfortunately, in this rare disease
22:57there is still too much time
22:59until the arrival of the correct diagnosis,
23:02and therefore if it takes too long
23:05before arriving at the diagnosis,
23:07clearly the disease progresses
23:09and it will be more difficult to be incisive
23:12for the health of the patient himself.
23:14But our commitment obviously
23:16does not end with the correct information.
23:18For more than 20 years we have been studying,
23:20in particular, this,
23:22and not only this obviously, disease.
23:24We have also been present in trade
23:26with a solution for more than 7 years,
23:28but we know very well
23:30that there is still too much to do,
23:32precisely because until today
23:34we have not reached
23:36what must be the key
23:38as has already happened in other therapeutic areas,
23:40such as oncology,
23:42in other areas, in other diseases.
23:44Fundamental in the case of pulmonary arterial hypertension
23:46is the early diagnosis
23:48and the knowledge of the pathology.
23:50I would say that a first limit
23:52is linked to the little knowledge of the pathology.
23:54Many colleagues,
23:56being a not so frequent pathology,
23:58not very common,
24:00do not know what pulmonary arterial hypertension is.
24:02So meetings like these
24:04or divulgative meetings
24:06have an incredible importance.
24:08On the other hand,
24:10it is necessary to enhance a network
24:12a bit like airports,
24:14so the less experienced centers
24:16know everything about the disease,
24:18but must have in mind
24:20the so-called red flags,
24:22suspect the disease
24:24to be in contact with the expert center
24:26which in turn must welcome patients.
24:28To raise awareness
24:30on the subject,
24:32APNEA was presented,
24:34the video with the protagonist,
24:36the testimonial, Alessia Zecchini.
24:38The journey the patient must face
24:40is within himself,
24:42facing his own fears,
24:44as an athlete must be followed by a team,
24:46the patient must be followed
24:48by a team of specialists
24:50and thanks also to research
24:52you can improve a lifestyle,
24:54a condition that is too often
24:56weakening.
24:58For me it was a great honor,
25:00an immense pleasure to participate
25:02in the Campagna del Cuore del Respiro.
25:08From Japan to Europe,
25:10to innovate and develop new therapies,
25:12especially in areas of psychiatry,
25:14neurology, infectious diseases,
25:16nephrology and oncology.
25:18This is Otsuka
25:20who celebrates his first 50 years in Europe.
25:2250 years ago, Otsuka Pharmaceutical
25:24started his research and development
25:26activity in the area of
25:28CNS, that is, psychiatry and neurology,
25:30fortunately finding
25:32important solutions
25:34that have become market leaders
25:36in the psychiatric area,
25:38especially in psychosis.
25:40Otsuka Pharmaceutical
25:42in these years has also developed
25:44all the research and development
25:46in the nephrological area,
25:48more recently a product
25:50with indication in the nephritic lupus
25:52has been launched and now in Italy
25:54we are introducing a new treatment
25:56for acute myeloid leukemia.
25:58But this is the present,
26:00we are waiting a lot for the future,
26:02we are entering new therapeutic areas,
26:04but all of them in rare diseases,
26:06especially in nephropathy
26:08The company is founded in 1921
26:10has 34,388 employees
26:12in the world,
26:14a consolidated turnover
26:16of about 13.7 billion euros
26:18and a expenditure of 2 billion
26:20in research and development
26:22in 2023.
26:24Always important
26:26is the commitment in the field of
26:28hematology.
26:30The contribution of Otsuka Pharmaceutical
26:32in the field of hematology
26:34has been a great success
26:36The contribution of Otsuka
26:38in onco-hematology
26:40is extremely important
26:42as it is developing
26:44new oral drugs
26:46that can be therapeutic alternatives
26:48for patients affected
26:50by acute myeloid leukemia.
26:52These patients
26:54have
26:56unmet medical needs
26:58that is, extremely relevant
27:00unresolved clinical needs
27:02and this contribution of innovation
27:04will improve
27:06both the survival
27:08and the quality of life of patients
27:10affected by acute myeloid leukemia.
27:12In Europe it employs about 500 employees
27:14and is also focused
27:16on the development of digital therapies
27:18maintaining its role as a leader
27:20in mental health.
27:22The contribution of Otsuka
27:24to the care and management
27:26of people affected by mental disorders
27:28has been truly decisive
27:30and I would say in a single word innovative.
27:32Initially,
27:34with the start of Otsuka's activity
27:36in the field of mental health,
27:38we had a completely new drug
27:40called ripiprazole
27:42which was mainly
27:44oral
27:46and allowed to manage
27:48a series of symptoms
27:50that with traditional drugs
27:52it was not possible to deal with
27:54especially the negative symptoms
27:56of schizophrenia and the positive symptoms.
27:58This was our latest news
28:00to contact us
28:02you can write to
28:04SaluteChiocciola
28:06at dncronos.com
28:08Thank you for following us
28:10and see you next time.