(Adnkronos) - "E’ molto importante portare maggiore visibilità sull’aspetto della nutrizione” perché “noi malati di Sla, sclerosi laterale amiotrofica con disfagia possiamo avere maggiori possibilità di alimentarci in modo corretto, e anche con gusto”. Così Davide Rafanelli presidente di SLAfood e consigliere nazionale Aisla, Associazione italiana sclerosi laterale amiotrofica Intervenendo alla prima edizione del convegno dedicato al tema della nutrizione in pazienti con Sla all’Università di Scienze Gastronomiche di Pollenzo (Cuneo)
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00:00It is very important to bring more visibility on a nutritional aspect,
00:15that is, to talk about the diet of the disease,
00:21because this makes it possible for us to have more possibilities to eat in the correct way and with more taste.
00:43I hope that this agreement marks a turning point on the approach we have regarding the diet of the disease,
00:56a more disciplinary approach, an approach that brings to benefit both the patient and the family,
01:10and that patients will find themselves.
01:14I, first of all, live this experience on a daily basis,
01:22and therefore I can bring a testimony of how to be able to eat in a correct way,
01:36which is also psychologically very important and recreates that moment of strong conviviality with your family, with your friends, with the people you love.
01:53I have never had an approach to the disease,
01:56I have never made a mistake or felt at war with something or someone.
02:05Here is the term, therefore, LADA, because it arrived very slowly, very silently,
02:15and it changed my life in a moment perhaps where you have the possibility of picking up something at a particular age.
02:32However, it has taken away the future, it has certainly tried to take me away from my dreams, and it has not succeeded.
02:48It will never take me away from the present.
02:53What continues today is my life, and this is what keeps me going day by day.