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(Adnkronos) - In questo numero:

Napoli, l’Accademia di Belle Arti colora il reparto di Ematologia del Pascale

Congresso Fnopi, ‘investire sugli infermieri è investire sul futuro del Paese’

Esperti, ‘con Jak inibitori cambiato per Les paradigma terapeutico’

Epilessie rare, impegno trasversale per un quadro normativo adeguato

Dal personal trainer Boceda, 5 esercizi efficaci ed errori da non commettere per avere gambe snelle e toniche

‘Future callin’, imprese e istituzioni a confronto su autonomie strategiche

Il ginecologo Grassi dell’ospedale Mazzoni di Ascoli Piceno, è cruciale prepararsi bene alla gravidanza per la salute dei futuri mamma e figlio

Malattie rare, novità terapeutiche per l’ipoparatiroidismo



A seguire lo Speciale Salus Tv dal titolo: “Dialoghi con Mr. Parkinson”, il primo docufilm pensato per smascherarlo

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00:00In this issue, Naples, the Academy of Fine Arts, colors the department of hematology of Pasquale.
00:16Congress of Nopi, investing in nurses and investing in the future of the country.
00:22Experts, with jack inhibitors, changed for hereditary systemic lupus, therapeutic paradigm.
00:30Epilepsy is rare, a transversal commitment for an adequate regulatory framework.
00:35From the personal trainer at Boceda, five effective exercises and errors not to be committed to have slender and tonic legs.
00:43And again, Future Calling, companies and institutions in comparison on strategic autonomies.
00:49The gynecologist Grassi of the hospital Mazzoni di Ascoli Piceno, it is crucial to prepare well for pregnancy for the health of future mother and son.
00:58Malattie rare, therapeutic novelties for lipoparathyroidism.
01:02To follow the special Salus TV from the title, Dialogues with Mr. Parkinson, the first docufilm designed to unmask it.
01:16Colors, abstract forms and creativity, to transform the hospital environment and improve the quality of attendance.
01:23The Paschal Institute of Naples was born in Cura dell'Arte, a project that unites health and art thanks to the collaboration between the Academy of Fine Arts of Naples, the Campania region and the Vitteleochemia.org association.
01:41The initiative, strongly desired by Antonio Pinto, director of the Department of Hematology of the Paschal Institute of Naples, was born during the pandemic and has seen the direct involvement of patients who have chosen the subjects of the works.
01:53Abstract images and bright colors to give a sense of harmony and hope.
02:23The Metropolitan Hospital is an object of art.
02:26It occurred to us, discussing with Professor Gaeta, to change the wagons, which are our reading rooms, in which the patients must necessarily stay, in the hope that they will be born soon and well.
02:41We used this very complex approach, which required an interaction between patients, students of the Academy, the School of Decoration, and our psychologists, to pull out these most abstract images, which now adorn all the rooms of our department of reading, including the ceilings.
03:05A real teamwork between artists, doctors and psychologists, with the aim of humanizing the department and improving the comfort of the patients.
03:13A particular patient wanted to tell it with an image.
03:19She said that she entered the hospital entrance, so the ground floor, with her head down.
03:25She didn't want to see anyone, and that as soon as she entered the department, she raised her head and was happy.
03:32We don't see the rest of them when they enter the department, and I'll tell you, it also happens to us workers.
03:37She spontaneously left a smile.
03:40Art thus confirms a powerful instrument of emotional and psychological support, capable of making hospitals new, less cold and more welcoming for everyone.
03:49It was a path that we also made complex, because behind every project of this type there is an administrative machine that must be organized and managed.
03:59But above all, there is the need to meet and respect the sensitivities of the people who are involved in these places.
04:07By combining clinical excellence and attention to the human dimension of the disease, the Neapolitan Institute is confirmed as an example of advanced health,
04:16where the person is really at the center of the path of healing, through a global approach to healing and thanks to innovative drugs that are revolutionizing the treatment of lymphomas.
04:26We have a very new first-line therapy in Italy for a couple of years, which is based on a new drug called Polatuzumab,
04:34and today we are able to bring the ability to heal these patients with aggressive lymphoma to almost 70-75%.
04:44Today, fortunately, the scenario has completely changed, because in the case of failure of the first line of therapy,
04:53in general, we would resort to the autologous transplant of stem cells, which is still an option,
04:58but now we have the possibility of treating these patients in the following lines, the first with very new drugs that, in addition to the papers, are changing the scenario.
05:10The drugs that are changing it are those that are technically called bispecific antibodies,
05:16which in reality are drugs that drive the lymphocytes of the patient against the lymphoma.
05:28The Third Congress of FNOPI, the National Federation of Nursing Professions, has concluded,
05:34that in its return to office, it has set record numbers.
05:385,000 members, 33 speakers, 15 hours of debates hosted in the plenary room and in the Rengo room.
05:45And again, 24 hours of training and 3 hours of shows.
05:49From the stage, President FNOPI Barbara Mangiacavalli remarked how nursing must be a strong project,
05:57capable of facing today's and tomorrow's challenges.
06:00We need to develop the specialist skills, the recognition and the legal and economic value of these skills,
06:07because nurses must be in touch with the health system of the country,
06:11they must be in touch with the social and health needs of this country.
06:15We have said it, the country is among the oldest in the world,
06:18it is a country that needs to think, reflect and put on the ground important solutions
06:23to face in the coming years the challenge of non-self-sufficiency, fragility and disability.
06:29Nurses are the heart of this system.
06:32I believe that we must act on two fronts.
06:35The first is to make the figure of the nurse more attractive.
06:40This is fundamental, because in Italy, objectively,
06:44there are a number of nurses per inhabitant less than that of other European nations.
06:51So, making it more attractive means, certainly, having increases from the economic point of view,
06:58but not only having more career opportunities.
07:01For this reason, we look with great attention to the establishment of new specialist degrees in the nursing field.
07:08There is a need for new organizational models,
07:11and in these new models, the figure of the nurse will be fundamental.
07:15A nurse is a professional who completes a cycle of university studies,
07:18she is a professional in all respects.
07:22Today, a nurse can play a fundamental role in the delivery of health care, even territorial.
07:29The role of connecting this extraordinary figure
07:33must be evidently exploited by all of us to make better services.
07:38From the Italian scenario to the European one, thanks to the participation of President Mircea Timofte
07:43and CEO Teodoro Scotrubas,
07:45who have sanctioned the entry of FNOPI within the European Nursing Council,
07:50an organization founded in 2004,
07:52which brings together the agents of regulation of the nursing profession in Europe,
07:57FNOPI will be entrusted to the Vice-President, in the person of Maurizio Zega.
08:07Lupus Erythematosus Systemicoles is a chronic autoimmune disease characterized by
08:11erythematous, cutaneous and mucous manifestations with sensitivity to sunlight,
08:16but which can also involve other organs such as brain and heart,
08:19joint and central nervous system.
08:22This is the difficulty in diagnosing and treating this serious pathology.
08:26Thanks to the progress of research in the therapeutic field in recent years,
08:29however, the situation has radically changed.
08:32In Italy, suffering from this pathology, which can occur at any age,
08:35with a severity that varies from case to case,
08:37there are about 100,000 people,
08:39mostly women in a 9 to 1 ratio compared to male sex,
08:42and that in 8 cases out of 10,
08:44at the onset of the disease, they are between 15 and 45 years old.
09:12And to give the important results for those who suffer from it,
09:16is the oral therapy based on jacqui libidori,
09:19already available in Italy since 2017 for the treatment of arthritis and rheumatoid arthritis.
09:24On this therapy, not yet authorized for the treatment of systemic erythematous lupus,
09:28a multicentric study is underway to assess its real effectiveness.
09:32In Italy, it is not yet possible to treat the disease in a clinical way,
09:36but it is possible to treat it in a clinical way.
09:39A multicentric study is underway to assess its real effectiveness.
09:43But how does this molecule, already approved for other pathologies,
09:46such as ulcerative colitis, antilose spondylitis, psoriasis arthritis,
09:51and atopic dermatitis,
09:52actually work for vitiligo and alopecia areata, as well as for S?
09:57Jacqui libidori are a new class of immunomodulators, let's call them that.
10:03They are small molecules that can be taken by mouth
10:06and that specifically block a certain enzyme,
10:09precisely the Janus kinase, JAK,
10:11which is in fact an activator of certain receptors.
10:15Our cells have a sort of antenna on their surface
10:19that receives inflammatory signals.
10:21Well, these small molecules are able to block many receptors
10:27that translate many different inflammatory molecules into these cells.
10:31From this point of view, they are very interesting molecules,
10:34so even recognizing a specific molecular target,
10:38they are actually able to block a wide range of inflammatory signals.
10:43So they are large-spectrum immunomodulators.
10:47My center is engaged in a clinical, multicentric trial
10:51precisely to experiment with the use of these molecules,
10:53in particular one of these, lupadacitinib,
10:56precisely to verify whether these molecules have in the lupus
11:00an efficiency equal to those already in other diseases
11:02for which they are authorized,
11:04such as rheumatoid arthritis or psoriasis arthritis.
11:07In most cases, the pathology occurs in a type of relapsing-remitting,
11:12in which phases of disease activity alternate with phases of consciousness
11:16and can take different forms depending on their severity,
11:19from mild to moderate and severe.
11:21But what do the JAK inhibitors differ from other treatments for this?
11:25First of all, from the fact that they hit targeted pathogenic mechanisms of the disease,
11:31substances called cytokines,
11:33which have a pro-inflammatory, pejorative effect on the disease itself.
11:37Another point is that they are taken orally,
11:41and therefore the easier it is to administer the drug
11:45and the greater adherence of the patient to the pharmacological treatment
11:49due to the simplicity of the intake.
11:51Another point is that the favorable effect arises quickly
11:56and just as quickly, if we suspend the drug,
12:00the effect of the drug itself is reduced.
12:04The therapy with JAK inhibitors is already available at our center
12:09in the form of a clinical trial.
12:11The results will be available soon
12:14and, however, there are all the scientific evidence,
12:17studies of phase 1 and phase 2 prior to this,
12:20which testify that the drug can be very effective
12:24and can be an additional weapon
12:26in the treatment of patients affected by systemic erythematosus lupus.
12:36Urgently approve a regulatory framework
12:39that integrates health, social and assistance needs
12:42into a single support system
12:45in order to guarantee a better quality of life
12:47to patients with rare epilepsy and their families.
12:50It is how much the challenges of rare and complex epilepsy
12:56promoted in Rome by DN Cronos Comunicazione
12:59with the non-conditioned contribution of JETS Pharmaceuticals.
13:02An appointment sponsored by the Epilessialice Foundation
13:06and the Epilessia Rare e Complesse Alliance
13:08that highlighted the daily difficulties
13:10related to still little-known pathologies
13:12that emerge mostly in infancy
13:15and that very often respond little to pharmacological treatments,
13:19syndromes that are characterized by the presence of other disorders
13:22such as cognitive disability and behavioral disorders.
13:48To facilitate the diagnosis of rare epilepsy,
13:51now you can count on the help of genetics.
14:22Epilepsy and rare epilepsy are very complex
14:24and bring with them different difficulties
14:27such as movement and language disorders.
14:30The multidisciplinary approach therefore becomes crucial.
14:52The problem is that the centers of excellence
14:56are not evenly distributed throughout the national territory
15:00but they are only found especially in the north center of our country.
15:07Therefore, it is necessary to organize and implement PDTAs
15:12that provide this type of integrated assistance.
15:17The regulation is essential to generate a correct commissioning
15:21both in the pediatric and adult stages.
15:23The recognition of all forms of rare and complex epilepsy is urgently needed.
15:28Only a few are recognized in the ILEA
15:30and we hope that the procedures, together with the tariff,
15:34will be approved soon and give the dignity and recognition of the appropriate paths.
15:39The other major path is the design of laws on epilepsy.
15:42It would be a fundamental element to recognize
15:45all patients affected by epilepsy, not only rare forms,
15:49and provide adequate and homogeneous protection
15:52throughout the Italian territory.
16:00With the arrival of beautiful spring days
16:02and the possibility of wearing clothes that cover the body less,
16:05it is more than normal for a woman to want to have tonic and light legs.
16:09However, despite hours of training and sacrifice,
16:11many feel a certain swelling
16:13or see their muscles too developed,
16:15if not a worsening of anesthetics,
16:17such as cellulite,
16:19often due to wrong exercises and too intense training.
16:24As explained by Christian Boceda,
16:25personal trainer and founder of CB Coaching,
16:28the holistic method designed to measure for women
16:30who want to feel in shape without obsession with fitness,
16:33correcting these errors,
16:34the dream of having slim and tonic legs is within everyone's reach.
16:37The bridge on the ground helps to tone the glutes
16:40and the back of the thighs,
16:42favoring circulation.
16:44Stretch with your feet on the ground,
16:46lift the pelvis, contracting the glutes,
16:48then go down slowly.
16:50Repeat for 20 times.
16:54The lifts for the calves.
16:57This exercise improves venous return
17:00and prevents fluid retention.
17:03On your feet, lift on the tips,
17:05keeping the abdomen active,
17:07then go down checking the movement.
17:10Repeat for 20 times.
17:13The step-up with swing.
17:15It combines muscle activation and lymphatic stimulation.
17:20Climb on the rise with one leg
17:22and swing the opposite knee before going down.
17:26Repeat for 12 times on each side.
17:29The lumen detachment.
17:31It is useful to shape the back muscles
17:34without thickening the quadriceps.
17:36On your feet, with the chest tilted forward
17:39and the back straight,
17:41lower the weights along the legs
17:43without bending the knees too much.
17:45Then go up.
17:47Repeat for 12 times.
17:49The drop-down rolls.
17:51They facilitate drainage
17:53and reduce retention.
17:55Stretch with the legs raised
17:57and perform rapid vibrations
17:59to stimulate circulation.
18:01Repeat for about 45 seconds
18:03or a minute at most.
18:05As Boceda underlines,
18:07some exercises can compromise
18:09the desired result.
18:11Squats and dips with heavy loads
18:13favor the excessive development
18:15of the quadriceps.
18:17Intense and prolonged running
18:19can increase inflammation
18:21and the sense of heaviness.
18:23High-intensity cardio
18:25without adequate recovery
18:27raises cortisol levels
18:29and worsens the quality
18:31of the tissues.
18:33In addition to training,
18:35it is also essential to take care
18:37of circulation with some simple shortcuts.
18:39Alternating hot and cold water
18:41under the shower,
18:43practicing self-massages
18:45from bottom to top
18:47and dedicating time
18:49also to stretching
18:51helps to keep the legs light
18:53and tonic.
18:55But how much do you have to train
18:57to get optimal results?
18:59Do you have to train
19:012-4 times a week?
19:03Combining toning exercises
19:05with strategies
19:07to improve circulation
19:09and promote recovery.
19:21The role of Europe and Italy
19:23in a world that is changing rapidly
19:25is to make our country more competitive,
19:27resilient and attractive,
19:29especially in one of the strategic sectors
19:31such as Life Science.
19:33This is the goal of the meeting
19:35of strategic autonomies
19:37in the new global scenario
19:39hosted in the seat of Lille Italia
19:41in Sesto Fiorentino,
19:43with the participation
19:45of institutional, European, national
19:47and regional representatives
19:49and the Consulate General
19:51of the United States of America
19:53in Florence, Daniela Ballard.
19:56I think that never,
19:58as in this historical phase,
20:00Europe has a visceral need
20:02for strategic autonomy.
20:04Europe, until now,
20:06in many sectors,
20:08has been dependent on third countries,
20:10has linked its destiny
20:12to that of third countries.
20:14We have seen it during the pandemic,
20:16but we have also seen it
20:18in moments not strictly linked
20:20to the medical-sanitary field.
20:22When a third country
20:24is different from what has been done
20:26until now, I think, for example,
20:28of the US government,
20:30this has very serious repercussions
20:32on the economy
20:34and on European strategicity.
20:36The central theme of the meeting
20:38is strategic autonomies
20:40in the new global scenario,
20:42that is, Europe's ability
20:44to act independently
20:46in key sectors such as health,
20:48energy, defense, technology and industry.
20:50Autonomies that are not equivalent
20:52to those of third countries
20:54have been developed to guide choices
20:56and reactions through dialogue
20:58with trusted partners.
21:00It is important to establish synergies
21:02with those who can make innovative
21:04and high value-added investments
21:06in our country,
21:08which grow the economy
21:10and our community,
21:12give jobs, guarantee exports.
21:14The case of Alilili,
21:16from this point of view,
21:18is exemplary.
21:20It has a strategic role
21:22as well as promoting concrete proposals
21:24to face global changes in action.
21:26Having a comparison
21:28between companies and institutions,
21:30both locally and nationally,
21:32and at the European level,
21:34is fundamental for a greater reason
21:36in a historical moment
21:38such as this,
21:40when we talk about scenarios
21:42that are also worrying,
21:44especially with regard to taxes
21:46and many other issues
21:48that are not directly related
21:50to the economy.
21:54Healthy pregnancy
21:56also goes through the care
21:58that is taken before conceiving.
22:00According to the Ministry of Health,
22:02adequate preparation and the adoption
22:04of preventive measures
22:06in the previous gestation period
22:08play a fundamental role
22:10in favoring a regular progress
22:12of pregnancy and the healthy development
22:14of the fetus.
22:16The health of women and couples
22:18faces pregnancy without having
22:20the appropriate information
22:22and the necessary preparation.
22:24However, as stated by the gynecologist
22:26Marco Grassi of the hospital
22:28Costanzo e Gaetano Mazzoni
22:30of Ascoli Piceno,
22:32preconceptual health,
22:34that is, the period before conceiving
22:36and pregnancy,
22:38is a crucial aspect
22:40of maternal and infant health.
22:42But in practice,
22:44a balanced and varied diet
22:46provides an adequate amount
22:48of folate, for example,
22:50foods with green leaves
22:52such as spinach, broccoli, lettuce,
22:54legumes such as peas and beans,
22:56fruit, strawberries, oranges and kiwis
22:58and the fruit set that are rich.
23:00However, during pregnancy,
23:02the need for breastfeeding increases.
23:04It is important to remember that folic acid,
23:06taken before conceiving and during
23:08the first three months of pregnancy,
23:10reduces the risk of fetal malformations,
23:12such as spina bifida.
23:14And what about lifestyle?
23:16A balanced diet,
23:18regular physical activity,
23:20the avoidance of harmful habits
23:22such as smoking, alcohol and the use
23:24of superficial substances,
23:26are essential to improve fertility
23:28and reduce the risk of complications
23:30during pregnancy.
23:32Another important aspect is
23:34what concerns vaccinations.
23:36If a woman contracts rosacea during pregnancy,
23:38the virus can be transmitted to the fetus,
23:40even against the morbid,
23:42parodied and rosacea in pregnancy,
23:44can increase the risk of spontaneous abortion
23:46and fetal death.
23:48In fact, as a precaution,
23:50the World Health Organization
23:52recommends to be vaccinated
23:54against these diseases
23:56with the morbid, parodied and rosacea vaccine
23:58before conceiving,
24:00to avoid risks to the child.
24:02In addition, breast cancer is also
24:04a perinatal danger,
24:06so vaccinating during pregnancy
24:08increases the risk of pregnancy.
24:10In this way, the immunity
24:12that the mother acquires
24:14with the vaccination
24:16is transferred to the child.
24:18In case of diabetes, for example,
24:20high blood pressure, autoimmune disease
24:22or epilepsy,
24:24it is essential to adopt therapies
24:26to avoid the use of drugs
24:28that could result harmful to the fetus.
24:30And why is it important
24:32to follow all the recommendations?
24:34Let's say that preconceptual health
24:36of the mother and the child
24:38has a healthy pregnancy.
24:40It is essential that all women
24:42of fertile age have access
24:44to adequate medical assistance,
24:46to clear information
24:48and preventive measures.
24:50For this reason, it is essential
24:52to raise awareness
24:54about the importance
24:56of a good preconceptual health
24:58from a young age.
25:00A healthy pregnancy, in fact,
25:02also passes through the care
25:04significantly the risk of complications
25:06during gestation.
25:08An adequate preparation
25:10and the adoption of preventive measures
25:12in the previous period of gestation
25:14play a fundamental role in favoring
25:16a regular progress of pregnancy
25:18and the healthy development of the fetus.
25:26Lipoparatyroidism is a rare disease
25:28with an incidence of about
25:300.8-2.3 new cases
25:32every 100,000 people per year,
25:34characterized by an inadequate
25:36secretion of parathormone.
25:38This pathology has been discussed
25:40at the Media Tutorial organized in Milan
25:42by Ascendis Pharma.
25:44Lipoparatyroidism is a condition,
25:46as the word says,
25:48in which endocrine glands
25:50that are called parathyroids do not work.
25:52As we talk about hypothyroidism
25:54in thyroid, for parathyroids
25:56we talk about hypoparathyroidism.
25:58When the parathyroid glands,
26:00which are four small glands
26:02that are right behind the thyroid,
26:04for this reason they are called parathyroids,
26:06do not work,
26:08the parathyroid hormone is not secreted,
26:10which is also abbreviated
26:12with the name PTH.
26:14Patients know this acronym well,
26:16PTH.
26:18When the PTH is low
26:20or does not work on the receptor,
26:22we have a series of consequences
26:24because parathormone is the main hormone
26:26that controls the calcium in the blood,
26:28and calcium is normal.
26:30Calcium is a fundamental ion for life.
26:32Experts have studied
26:34various aspects of the pathology,
26:36from epidemiology to the clinical framework,
26:38up to the complications
26:40and the most recent therapeutic prospects.
26:42It was a great innovation
26:44to have a drug that is the right drug
26:46for this pathology,
26:48which until now we have treated
26:50with surrogates, we have tamponed
26:52and treated the symptom.
26:54Now we have a therapy that replaces
26:56parathormone in an adequate way
26:58and that allows to cover the calcium
27:00for all 24 hours.
27:02It is a fragment of PTH
27:04of the parathyroid hormone
27:06that is linked to a vector
27:08that can work for 24 hours
27:10and therefore guarantees not only
27:12the adequate calcium for the patient,
27:14but also guarantees the management
27:16of the comorbidities
27:18that the patient can develop over time
27:20because with the excess of calcium
27:22and calcitriol that we are using now,
27:24the patient can have nephrocalcinosis.
27:26The Milan Media Tutorial
27:28confirms the commitment of Ascendis Pharma
27:30to counteract rare diseases
27:32such as lipoparathyroidism
27:34with particular attention to the needs of patients.
27:36Ascendis was born in 2007
27:38focusing on the development of drugs
27:40for endocrinological rare diseases.
27:42Currently the company has developed
27:44and had the authorization of two drugs
27:46by the European Commission
27:48and in Italy we had the privilege
27:50and the fortune to have three centers
27:52involved both in the study of phase 2
27:54and in the study of phase 3
27:56regarding the development of substitution therapy
27:58for lipoparathyroidism.
28:00So we are committed and we want
28:02to make sure that patients in Italy
28:04have access to a therapy
28:06that could revolutionize their lives.
28:12Dialogues with Mr. Parkinson
28:14is entitled Dialogues with Mr. Parkinson,
28:16the first docufilm made
28:18by the Parkinson Confederation
28:20in Italy with the non-conditioning support
28:22of Zambon that tries to make
28:24multiple masks fall
28:26behind which it hides its true identity
28:28this multiform neurodegenerative pathology
28:30of which in Italy
28:32more than 300,000 people suffer
28:34characterized by a wide variety of symptoms
28:36over 40 that combine
28:38with each other in a way
28:40and with different intensity in each person.
28:42In Dialogues with Mr. Parkinson
28:44in Wonda in Prima Vision
28:46on April 12, the day after
28:48World Parkinson's Day
28:50at 13.45 on 7D
28:52and then available on the site
28:54and on the social channels of the
28:56Parkinson Confederation Italy
28:58the personification of this disease
29:00converses with three patients
29:02a doctor and a caregiver
29:04and so slowly the hereditary
29:06and mean Mr. Parkinson leaves the place
29:08to a slightly less cynical intruder
29:10who confesses his admiration
29:12for the stories of character beyond the tremor.
29:14But who is Mr. Parkinson?
29:16He is a detestable being
29:18who invades the body with special effects
29:20for the journalist Vincenzo Mollica
29:22who writes him a special letter
29:24and hates him, but at the same time
29:26thanks Valentina, who has become a mother
29:28despite his presence, because she says
29:30if it weren't for you
29:32I wouldn't have been aware
29:34of being so strong.
29:36By reaction he began to pedal more and more
29:38instead Roberto who realized
29:40how during the intense sports activity
29:42Mr. Parkinson was not there
29:44and that he must never give up.
29:46He sees him sometimes as a bradipo
29:48other times as a crazy monkey
29:50Rossana, wife and life giver of Alberto
29:52who is close to him in this fight
29:54and with whom he says
29:56we are still on the ring.
29:58So he did his mission of life
30:00the president of the Parkinson Confederation
30:02Italy Giangi Milesi who is committed
30:04to fight the suffering of people
30:06with his own disease and their relatives
30:08because he says
30:10life must be happy for everyone
30:13The uniqueness of this docu-film
30:15is the personalization of the disease
30:17in Mr. Parkinson
30:19but why this choice?
30:21The disease is like
30:23playing chess with you
30:25you feel his aggression
30:27how he manages
30:29to face
30:31an illness
30:33and another one jumps out
30:35it's a complex disease
30:37that occurs
30:39thousands of times
30:41in a thousand different ways
30:43there is always the enemy
30:45that fights you from somewhere
30:47that stings you
30:49that hits you with pain
30:51that hits you with an illness
30:53all these forms
30:55make the disease as if it were alive
30:57as if it had
30:59almost a will, an identity
31:01a crazy thing
31:03from the point of view
31:05of reasoning
31:07but it is something that makes effective
31:09our educational action
31:11and this is the reason
31:13of this film
31:15that wants to educate
31:17to fight the disease
31:19in the most effective way possible
31:21He defines it as a prison
31:23where the keys must be found
31:25Paolo Calabresi
31:27Professor of Neurology of the Catholic University
31:29and Director of the Complex Operative Unit
31:31of Neurology
31:33of the Gemelli-Irx Polyclinic in Rome
31:35Creating a prison is a stigma
31:37the patient
31:39from a condition of normality
31:41of physiological situation
31:43finds himself
31:45to have the weight
31:47of a diagnosis
31:49that is a diagnosis
31:51that evokes bad things
31:53for the future
31:55the exit key is an individual key
31:57we must be able to find it
31:59together with each patient
32:01where
32:03in addition to the pharmacological aspects
32:05we must consider
32:07some fundamental aspects
32:09sociality is an important element
32:11for sociality it means
32:13maintaining relationships with the family
32:15with work
32:17with friends
32:19and the less pessimistic perception
32:21of the future
32:23because the patient
32:25thanks to an approach
32:27not only pharmacological but holistic
32:29is able to see
32:31a more positive future
32:33according to the investigation
32:35Parkinson 1.0100.000
32:37conducted by Astra Research on 525
32:39patients and Italian caregivers
32:41in December 2024
32:43for a person out of 3
32:45Mr. Parkinson is an infiltrator ready to do damage
32:47and for one out of two
32:49the impact index of this pathology
32:51on daily life is high
32:53to feel it are above all the rhythms
32:55that become slower and the movements
32:57that become tiring
32:59tiredness is often invalidating
33:01free time in travel as well as
33:03at work. Well 79%
33:05of the interviewees then did not know
33:07this disease before the diagnosis
33:09and in particular did not expect
33:11such a multiplicity of symptoms
33:1363% yet
33:15Parkinson is the neurodegenerative disease
33:17with the fastest growth
33:19and its prevalence has doubled
33:21in the last 25 years, hence the commitment
33:23of Zambon to this
33:25pathology
33:27In Zambon we are guided by the commitment
33:29to improve the quality of life
33:31of people through innovation
33:33but also the support
33:35to the community of patients
33:37to the clinical world is important
33:39because it puts us
33:41in a position to respond
33:43to the needs
33:45of people forced
33:47to face diseases with a high
33:49impact such as Parkinson's disease
33:51and this
33:53also includes the work that we have done
33:55and continue to do with the
33:57Parkinson's Confederation of Italy
33:59and which has been concretized
34:01in the realization of this documentary
34:03which brings on the screen
34:05the personification of the disease
34:07showing it in all its complexity
34:15This was our latest news
34:17to contact us you can write to
34:19salutechiocciola.com
34:21Thank you for following us
34:23and see you in the next episode
34:27Music
34:29Music
34:31Music
34:33Music
34:35Music
34:37Music

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