(Adnkronos) - “Oggi la ricerca sta facendo passi da gigante. Per quanto riguarda alcune patologie, che una volta portavano a degli esiti fatali per i pazienti, oggi disponiamo di terapie veramente innovative. Il paziente non solo vede allungarsi la sua speranza di vita, ma vede anche migliorare la qualità della stessa, in quanto si tratta di terapie meno pesanti, con minori effetti collaterali e che consentono, pertanto, di fare una vita pressoché normale”. Sono le parole di Rosalba Barbieri, vicepresidente nazionale dell'Ail, l'Associazione italiana contro le leucemie, i linfomi e il mieloma, in occasione del media tutorial promosso da Intermedia a Milano e dedicato al Congresso Ash, il 66esimo appuntamento annuale della Società Americana di Ematologia, svoltosi a San Diego dal 7 al 10 dicembre.
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00:00Today, research is making huge strides, fortunately, so as far as some pathologies are concerned,
00:11which once unfortunately led to fatal outcomes for patients, today we find ourselves faced
00:20with truly innovative therapies, where the patient not only sees his hope for life
00:27but also sees the need to improve his quality of life, because they are less heavy therapies
00:33with less side effects and therefore allow him to live a more or less normal life.
00:41From a national public health point of view, what are the needs that are still not addressed?
00:49I think maybe interdisciplinarity, the process of taking charge, what are the elements that are still missing?
00:56Because a patient feels really supported, let's say, and has a complete care.
01:03First of all, access to care as quickly as possible, from the moment a new therapy is discovered
01:12to the moment in which this therapy goes to the patient's bed, because many times
01:17bureaucracy involves extensions, so patients do not heal in the meantime, this is the first thing.
01:27Then we need an assonance, a collaboration between all those who are the various levels
01:34that take care of the patient, from the family doctor who is the first to realize that something is wrong
01:42to the government institutions that must instead speed things up and ensure that the national health service
01:52always guarantees access to that medicine, giving the possibility to use it for free.
02:00So it is a path that sees the synergy of all those who work in the health field for the patient.
02:10We are naturally close to the patient in the hospital, but we are also close to the patient in parliament,
02:20to the government, in the various institutional places, because we carry the voice of the patients.
02:27So the patient, for a while, on this side, is listened to, fortunately.
02:32So it's not just the doctor and the therapy, but it's also the patient who tells what he needs
02:39and therefore his care and safeguarding of the patient are of course very important,
02:45and the institutions must take care of it.