(Adnkronos) - "Oggi le articolazioni dei pazienti con emofilia sono più protette. Questo grazie ad una corretta profilassi, al monitoraggio delle articolazioni e a terapie sempre più efficaci". Queste le parole di Chiara Malinverno, medical advisor haemophilia di Sobi in occasione dell'incontro "Sobi Let’s Talk. Mont Blanc experience: to the next level" che ha l’obiettivo di approfondire argomenti di attualità e prospettive inesplorate in un contesto, per alcuni aspetti ancora poco conosciuto, come quello delle malattie rare.
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00:00In SOBI, we always try to make a difference, listening to the unsatisfied needs of people
00:11who live with a rare pathology, also called unmet needs, with the aim of improving their
00:18quality of life.
00:19Today, the joints of hemophilic patients are more protected, thanks to a correct prophylaxis,
00:25and also to therapies that are more and more effective, as well as important and also
00:34continuous, accurate and correct information, not only for people with hemophilia, but also
00:39for their families and also for their caregivers.
00:42So, let's say that with the therapeutic evolution there has been a change, a substantial change.
00:48Thanks to the correct prophylaxis, it is possible to reach high levels of protection
00:54of people with hemophilia, and with the therapeutic evolution in the imminent future, it will be
01:00possible to reach even higher levels and, therefore, to talk about the normalization of
01:05the hemostasis, where the eighth factor continues to be and remains fundamental.
01:10So, the therapeutic evolution, however, has brought a substantial change, and this substantial
01:17change, precisely with the imminent therapies, will also mean that we will be able to reach
01:23even higher levels of hemostasis, until we can talk about the normalization of the hemostasis,
01:28and this will lead to a greater protection of people with hemophilia, greater protection
01:33for their joints and also, consequently, an improvement of their quality of life.