A graduate who experienced bizarre symptoms like smelling bacon and frequent déjà vu turned out to have a brain tumour.
Vegetarian Lucy Younger, 23, was just about to start university when she started experiencing the bizarre symptoms - which also included zoning out.
She visited the GP three times and was misdiagnosed with panic disorder and given antidepressants.
Worried Lucy was given a CT scan, blood tests and an ultrasound after doctors thought her symptoms may be due to polycystic ovarian syndrome (PCOS).
But scans revealed she had a benign brain tumour on her frontal lobe - and needed surgery within a matter of weeks.
The zoning out turned out to be seizures which were due to epilepsy.
Lucy, from Crystal Palace, London, said: “Doctors were telling me one thing - but it wasn’t until I Googled my symptoms that I realised, I think I have a brain tumour.
“I genuinely felt like I was going insane for so long - I was being told my seizures were panic attacks.
“When the symptoms first started I thought it was weird. But I was drinking a little bit, so I thought I must’ve been overdoing it.
“I calmed down on the nights out and adapted my lifestyle - but once uni actually started, the symptoms only got worse.
“I was smelling bacon all the time - I’m a vegetarian, so I was like, what the hell is going on?
“My friends would even joke - oh, Lucy’s having a moment again!”
Lucy, who is out of work due to illness, first started noticing symptoms just after she started her BA in English at Goldsmiths, in September 2019.
She started experiencing déjà vu, as well as visual hallucinations - like pink elephants and rollercoasters.
Initially thinking she was just partying too hard during freshers, Lucy stopped drinking as often, and regularly chose staying in over nights out.
But her symptoms only started getting worse - and she experienced a range of sensory hallucinations, like smelling bacon, pins and needles in her face and tasting metal.
Lucy tried to downplay her symptoms at first, thinking they’d pass - but once she started getting sharp headaches, she decided to visit the GP for the first time.
She said: “Straight away, they were like - it’s anxiety.
“I didn’t feel all that anxious, but I’d just done a big move from Newquay to London and was meeting lots of new people - so I thought, I guess my brain’s just working overtime.
“But I was still skeptical - I felt really happy with where my life was at that point.”
Despite taking things easy after her anxiety diagnosis, Lucy began to notice she’d zone out for long periods during lectures.
She found it impossible to concentrate during class - and it was beginning to disrupt her studies, so she went back to her GP.
“The doctor said, you’re really depressed, you’ve been having really bad panic attacks,” Lucy added. “But, I just wasn’t.
“I figured, they’re the GP - they know what they’re talking about, so I guess I’ll just do what they say.”
Vegetarian Lucy Younger, 23, was just about to start university when she started experiencing the bizarre symptoms - which also included zoning out.
She visited the GP three times and was misdiagnosed with panic disorder and given antidepressants.
Worried Lucy was given a CT scan, blood tests and an ultrasound after doctors thought her symptoms may be due to polycystic ovarian syndrome (PCOS).
But scans revealed she had a benign brain tumour on her frontal lobe - and needed surgery within a matter of weeks.
The zoning out turned out to be seizures which were due to epilepsy.
Lucy, from Crystal Palace, London, said: “Doctors were telling me one thing - but it wasn’t until I Googled my symptoms that I realised, I think I have a brain tumour.
“I genuinely felt like I was going insane for so long - I was being told my seizures were panic attacks.
“When the symptoms first started I thought it was weird. But I was drinking a little bit, so I thought I must’ve been overdoing it.
“I calmed down on the nights out and adapted my lifestyle - but once uni actually started, the symptoms only got worse.
“I was smelling bacon all the time - I’m a vegetarian, so I was like, what the hell is going on?
“My friends would even joke - oh, Lucy’s having a moment again!”
Lucy, who is out of work due to illness, first started noticing symptoms just after she started her BA in English at Goldsmiths, in September 2019.
She started experiencing déjà vu, as well as visual hallucinations - like pink elephants and rollercoasters.
Initially thinking she was just partying too hard during freshers, Lucy stopped drinking as often, and regularly chose staying in over nights out.
But her symptoms only started getting worse - and she experienced a range of sensory hallucinations, like smelling bacon, pins and needles in her face and tasting metal.
Lucy tried to downplay her symptoms at first, thinking they’d pass - but once she started getting sharp headaches, she decided to visit the GP for the first time.
She said: “Straight away, they were like - it’s anxiety.
“I didn’t feel all that anxious, but I’d just done a big move from Newquay to London and was meeting lots of new people - so I thought, I guess my brain’s just working overtime.
“But I was still skeptical - I felt really happy with where my life was at that point.”
Despite taking things easy after her anxiety diagnosis, Lucy began to notice she’d zone out for long periods during lectures.
She found it impossible to concentrate during class - and it was beginning to disrupt her studies, so she went back to her GP.
“The doctor said, you’re really depressed, you’ve been having really bad panic attacks,” Lucy added. “But, I just wasn’t.
“I figured, they’re the GP - they know what they’re talking about, so I guess I’ll just do what they say.”
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FunTranscript
00:00 I just have this problem with the NHS and I feel like I have the right to now
00:04 voice it because this same problem just keeps happening to me and I absolutely
00:10 know it will be happening to so many other young people out there and this
00:15 issue is just not being listened to because of our age and because we're
00:20 young and we just get stereotyped in these categories and it is so
00:24 frustrating. I've just got back from a hospital appointment that I've been
00:28 waiting for for so long. I started getting kidney pain about now two months
00:34 ago just after I had my first cancer surgery and I went to the doctors and
00:40 they were like you have a UTI whatever and I got put on antibiotics. All of my
00:46 tests came back negative for infection I still got put on antibiotics. I then
00:51 ended up in A&E because I was in so much pain. I said to the people in A&E I was
00:57 like I've come back negative for infection like don't put me on
01:00 antibiotics like there is something else going on please scan me. They didn't scan
01:05 me and by this point I'd already been scanned previously and they'd found a
01:10 kidney stone and a cyst and I told them this and I was like please can you do
01:16 like a CT scan because that was just an ultrasound and they were like no you've
01:20 definitely got an infection. They didn't even test me, they didn't even like get me
01:24 to wean a pot they were just like no you're young you've got a UTI and I was
01:29 like I don't. So they gave me antibiotics, gave me painkillers and sent me on my
01:33 way. I took this course of antibiotics just to prove to them that it wasn't a
01:38 UTI. Of course it wasn't a UTI because I was still in agony. I finally got this
01:45 urology appointment today and the urologist was like of course it's not an
01:50 infection. He showed me all of my markers and he was like there was no markers of
01:55 infection. He was like the painkillers you got given we're not gonna even touch
01:59 that pain because you don't have an infection. He was like the kidney stones
02:03 that you have, he was like that's not the cause of pain. He's had to order me an
02:07 urgent CT scan because he was like there's something else going on and he
02:11 was like you also have cancer. So he was like you should have had that scan
02:16 straight away.
02:19 you
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02:38 you
02:40 you
02:42 you
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02:52 you
02:54 [BLANK_AUDIO]