TikTok and Instagram star Evie Meg - thistrippyhippie - has built an audience of millions bringing attention to her autoimmune disorder PANS/PANDAS and talking about her Tourette's Syndrome diagnosis - while still taking the time to have some fun.
See the full story at www.shotstv.com
See the full story at www.shotstv.com
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00:00 I remember the first time I saw someone else having a seizure.
00:02 It was really shocking and it was like,
00:04 oh my goodness, is this what it's like
00:06 for the people who see me have one?
00:08 - We're here at the home of Evie Meg,
00:11 one of Britain's most influential social media stars.
00:14 - There is the occasional, why would you post this?
00:17 Usually just people not understanding
00:19 why it would be posted, which I do understand
00:21 because it is very vulnerable
00:22 and it's not very nice to watch.
00:24 But if you saw someone in the street having a seizure,
00:27 I want people to be able to recognize it
00:29 and think I know what it is.
00:31 - Where do you stand now in terms of numbers of followers?
00:34 - 16 million.
00:35 Like you can't really imagine that amount of people.
00:38 I've met a lot of the people with the same condition,
00:42 autoimmune basal ganglia encephalitis.
00:44 I just try and get the name out there
00:46 and make people aware of what it can do
00:48 and what it can look like.
00:49 But then also trying to keep things
00:52 a little bit lighthearted as well.
00:54 (gentle music)
00:56 [BLANK_AUDIO]