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AmusantTranscription
00:00After marquee screenings in New York, Montreal, and Toronto,
00:04Celine Dion's documentary, I Am Celine Dion, starts streaming tomorrow.
00:09And Lainey sits down with the film's director to discuss capturing
00:12Celine's vulnerability and fight with Stiff Person Syndrome.
00:16I held my breath for a minute because I didn't want to stop filming.
00:21I thought, what would Celine do?
00:24Celine would say keep filming.
00:25Yes.
00:26And so I did.
00:28Irene and her team were amazing to just capture
00:35who I am and what I was struggling with.
00:38And it took a while.
00:39At the very beginning of this process, she said, I want everything in my voice.
00:45I miss them.
00:46If I can't run, I'll walk.
00:48If I can't walk, I'll crawl.
00:50When you reflect back to that scene in the film, do you think you would have believed it?
00:56Hmm.
00:57I could not have imagined how open she would have been.
01:01She was not recognizable.
01:03And I don't mean, oh, here's Celine without makeup.
01:07This is the dancer, the performer, the woman we know is unrecognizable.
01:13It's not an overestimation to say I was frightened.
01:16But I did really feel like it was part of what I had set out to do.
01:20Honest, but often tough to watch, Peabody and Emmy-winning filmmaker Irene Taylor
01:27chronicles Celine's challenging new reality away from the stage,
01:31including a rare muscle spasm that briefly shuts her body down.
01:36I've missed not finishing that tour, obviously.
01:39But ever the pillar of courage, Celine perseveres.
01:44And with Irene's help, she aims to usher in her next era as a performer.
01:49I was born ready, trust me.
01:52Are there moments in the film that seeing people watch it surprised you with how they reacted to it?
01:59Yeah.
02:00Celine is questioning if she was good, just like hit me in the gut.
02:04And there was laughter in the audience last night when she said that.
02:09And I realized for her to question her talent, to question if people still love her,
02:17was so outrageously funny.
02:19It was like, Celine, we got you.
02:22Yeah.
02:22My mother has an incurable illness.
02:24Capturing those moments is essential in having people understand what a rare illness looks like.
02:30So thank you on so many levels.