This Woman’s Extremely Rare Condition Links Her EYELIDS to Her JAW

Real Fix

Credit: SWNS  A woman has an extremely rare condition that links her eyelids to her jaw which causes her eyes to droop - when she opens and closes her mouth.  Mandy Bardisbanian, 33, is one of only 300 people in the world with Marcus Gunn Jaw-winking Syndrome - which has caused her to be bullied and self harm.

Transcript

00:00 I am about to show you something that almost 100% guaranteed you have never seen before.

00:06 I have something called Marcus Gunn Jaw Ink Syndrome.

00:09 It's where a nerve from your eyelid that's supposed to go to your ear went to my jaw

00:13 instead.

00:14 So whatever my jaw does, my eyelid does.

00:17 Watch this eye.

00:22 Or when I chew.

00:28 It is such a rare condition that most doctors will never see it in their entire careers

00:32 and most of us will go through our entire lives without ever meeting anybody like us.

00:36 If you have Marcus Gunn Jaw Ink Syndrome, please know that you are absolutely beautiful

00:40 and you are not alone.

00:42 For everybody else, if you see something a little weird on somebody, maybe think twice

00:47 before commenting on it.

00:49 I also have something called ptosis.

00:51 See how this eyelid hangs lower than this one?

00:54 Most of us have ptosis along with our Marcus Gunn, but not always.

00:57 According to the National Organization of Rare Diseases, there's only about 300 of us

01:00 on record in the world, which is a little hard to believe since so many of you have

01:04 reached out to me.

01:05 If you're not sure, please go see an ophthalmologist and ask them questions.

01:08 They'll be very excited to see you because you're probably the only one they will ever

01:11 see in their careers.

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Transcript

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