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Cystic fibrosis

4 months ago

Parents of daughter with Cystic Fibrosis react to life-saving drug funding report by NICE

The National Institute for Health and Care Excellence (NICE) has issued preliminary guidance stating that three drugs used to treat cystic fibrosis (CF) should not be used within the NHS.

Kaftrio (ivacaftor/tezacaftor/elexacaftor), Orkambi (lumacaftor/ivacaftor), and Symkevi (ivacaftor/tezacaftor) are the three drugs in question, produced by Vertex Pharmaceuticals.

Jess and Will Meyrick have a 2-year-old daughter called Ottilie with the condition.
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